Hi I am still struggling with hypothyroidism, adrenal issues..now have fibromyalgia and fibrocystic boobs. Was trying to heal with homeopathic and herbs - and have made some progress. Am at a stage ( 9 years after CFS diagnosis) where I am considering ( after many years research and trying several protocols) taking T3......it would be a huge relief to find a sympathetic endo in my area (bath/bristol/wilts/somerset...private or NHS who could help.....is there anyone in my area? Many thanks and Merry Christmas!
Replies via private messages please in line with posting guideline#24, thank you.
I wish i could help! I'm so sorry that it took you so long to discover that t3 could help you! You can even order it yourself, if you can't find a doctor. I do not believe in CFS or Fibromyalgia, as Diseases, but as symptoms of something else..like low metabolism!
Yes Faith 63 have often gone to do it (order t3) but having read Recovering with T3..felt it would be important to have a doc to oversee it all.....the trouble with CFS type illnesses is seeing through the maze of symptoms and due to adrenal issues I react to everything so need a helping hand.........thanks for your message and I agree with you that all these syndromes are just symptoms.
I am sorry you are feeling so unwell and I think undermedicated misdiagnosed. Is it possible for you if you've had a recent thyroid hormone blood test to get a copy from the GP, we are entitled, with the ranges and members can comment. If not ask for a new one, not taking levo before the test and have it as early as possible. Also ask for Vitamin B12, Vit D, iron, ferritin and folate to be tested as we are usually deficient.
One of our doctors who died last year was one who was trained as a medical student and they learned ALL of the clinical symptoms and medicated patients until they were well. Nowadays a big mistake is to give the patient just sufficient to bring the TSH down but not to remove clinical symptoms thus we get other conditions. This is how he became involved. Dr Skinner was a virologist and about ten years after the introduction of the blood tests and diagnosis by TSH only people were sent to him with 'mysterious symptoms'.
I noted in the Telegraph and the Daily Mail a small paragraph describing a patient who had been undiagnosed with hypothyroidism for 6 years. They clearly do not realise that this is the least of it and I have used this opportunity to write to these newspaper highlighting the need to increase media awareness regarding this serious shortfall in patient care in the United Kingdom. You will find this under the Letters section. (added January 2011)
He also wrote to every endocrinologist in the UK to come to a meeting to discuss the parlous situation of undiagnosed/undermedicated people. They, one by one, refused - the final person I think the day before the meeting. So you see, how they refuse to recognise the continued suffering. Dr Skinner himself was hauled before the GMC for investigation for prescribing to patients with symptoms seven times and I suspect that eventually caused the stroke.
If you read the book 'Tears Behind Closed Doors', either borrow from theThyroid UK library and it's also available from Amazon. You will see that Dr Barry Peatfield, who finally resigned his licence can still help patients get well even though he cannot prescribe.
I am sorry you feel so poorly and hope you find help soon. I started on T4/T3 in August this year after feeling ill for years on T4 only. I too live in the Bath area and my appeals for help to my GP fell on deaf ears. In fact the last time I saw him he reluctantly said he would refer me to an endicrinoligist at the local hospital but told me that it would be a waste of time as they would not prescribe T3. He then ended by saying well you ARE 70 and you havent got many years to live. I was gobsmaked well and truly. Said nothing, picked up my handbag and walked out. I ordered T3 on line and started on a low dose, which I increased very slowly. I check my temp and pulse every day and make a note of it. I have soaked up every piece of advice from the generous spirited and knowledgeable people on this site and now 4 months down the line I feel like I am getting my life back. After many years of being undermedicated it will take time for me to get back to my old self, but thanks to the wonderful people on health unlocked I know I am on the right track at last. I am so grateful.
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