Hi all, I hope someone is able to help me and perhaps give me some advice before my appointment to see an endocrinologist on 29th November '14. Sorry in advance for this being a very long post...
I will give a background first of the whole saga; I have been having all kinds of symptoms since 2007, but my symptoms seemed to start getting really bad in 2009. The main ones which really bother me are total lack of libido/unable to produce much cervical fluid, and the fatigue I get the day after exercise. I also have urinary frequency which causes me to have constant UTIs and then thrush over and over again. I have seen numerous GPs and consultants, but no one seemed to know what was wrong. I saw 3 gynaecologists (all discharged me), 3 endocrinologists, a urologist, a family planning doctor, and also paid privately to have a brain scan done as my prolactin level was slightly high, but this was clear. The endos tested my thyroid function and everything kept coming back as normal. My urologist said he doesn't know what has caused/is causing my urinary symptoms. The family planning doctor said there is nothing wrong with my hormone levels (even though I calculated they were low at time of my cycle). I have just been going round in circles since 2009. I am now 34 and am very worried that I might never be able to have children as I feel as though I'm infertile at the moment with 2 day periods and hardly any cervical mucus/lack of libido. I haven't been able to have a relationship since 2010 due to this problem, it is so severe. Prior to these symptoms, I was functioning completely normally. Anyway, I ended up paying privately to have a thyroid profile carried out and the results are as follows:
Total thyroxine (T4): 110nmol/L (59- 154)
TSH: 1.59mIU/L (0.27- 4.2)
Free thyroxine: 19.3pmol/L (12.0- 22.0)
Free T3: 4.7pmol/L (3.1- 6.8)
Thyroid peroxidase antibodies: 77.2IU/mL (0-34)
Due to my antibodies coming up slightly high I was sent for an ultrasound of my thyroid and it turned out I've got a nodular goitre and a cyst. I went back to my GP and she said that because my thyroid levels are all within the normal range I can't be treated!! I just couldn't believe that after finally getting somewhere after seeing doctor after doctor my GP said there's nothing that can be done. I managed to get a referral to an endocrinologist at the Queen Elizabeth Hospital in Birmingham (Dr Boelaert?) and my appointment is on the 29th November. I just can't understand why my blood results are constantly coming up normal, but my symptoms are seriously affecting my life. My blood results always seem to make me look like a picture of health and I really can't understand it. The other symptoms I have are: twitching in my neck, anxiety, cramps, extreme fatigue after exercise, thirst, dry eyes, palpitations, alcohol intolerance (suffering for days after). Does anyone suffer with the same symptoms and normal blood results, and what was your outcome? I would like to know if there is any advice anyone can give me before I see the endo, as I am really worried I am just gonna be told 'sorry, your results are normal and there's nothing we can do'. Is there anything else I can ask the endo to test me for or are there any other more specific tests that can be done? Could it be that my thyroid hormones are 'imbalanced' in some way? I know that my mother has got a goitre and she suffered for about 15 years with symptoms and her results were constantly 'borderline' until a doctor finally treated her. I will be most grateful for any advice anyone can give me before I go and see my fourth endo...Thanks in advance.