I really don’t know what to do and my GP admits to being clueless. I am waiting for an endocrinology appointment but in the meantime would really appreciate some advice. I was diagnosed with Hashimoto’s hypothyroidism and started on Levothyroxine in June 2014. Started on 50mcg, increased every 3 weeks to 75, then 100, then 125mcg. I’ve been on 125mcg for almost 8 weeks. I have improved slightly but still feel very symptomatic of hypothyroidism – very slowed down physically and mentally, no memory, confused (improving), difficulty finding words. Back in June I needed 10 or 12 hours sleep. I’m sleeping less now (around 7 or 8 hours) but if I sit down for more than 15 minutes I would fall asleep. Couldn’t make a dash for it if my life depended on it. Feel exhausted all the time and that has not improved much since I started the levothyroxine. Putting on weight about 1lb a week since I started levothyroxine. My temperature has stayed between 35.6 (96.1) and 36.3 (97.4) all this time (on occasions dropping to 35 (95) and mostly around 35.9). My blood pressure has been constantly low (85/63 and sometimes a little lower or higher. My pulse has been between 52-68 mostly but on a few occasions it has dropped to 32!!! but comes back up again soon after. My blood results a month ago (after being on 125mcg for a month) were
Free T3 6.9 [3.1-6.8]
Free T4 23.01 [12-2]
But I certainly didn’t feel hyperthyroid – more like hypothyroid. (The feeling of being cold all the time improved although sometimes it came back)
Soon after that (3 weeks ago) I did a detox diet eating foods to boost the immune system and to help with Hashimoto’s – this included stopping gluten and eating a super nutritious organic diet which I have carried on till now. Within a few days my head felt clearer and I was less confused but still exhausted and still constipated, dry skin, hair falling out in clumps.
Today’s blood tests show:
Free T3 6pmol/L [3.1-6.8]
TSH 0.01 [0.27-4.2]
Free T4 26.09 [12-22]
I know this could indicate that I need to have less thyroxine, but I have already been on a lower dose with little improvement. I know some people are outside the normal range so I wonder if I should try going up to 150 mcg? But my low blood pressure and pulse is a worry so I don’t want to make that worse. I hear about people who are on 300mcg but wonder if they need that to get them to the ‘normal’ range or if they go higher than normal.
I am also confused about why my free T3 is now lower than the last blood test despite my efforts to do everything to help the conversion from T4 to T3.
A few days ago I noticed that I broke out in sweat on my forehead/upper lip which is unheard of for me. My temperature then was 36.7 (97.3) but it went down to 36.4 ten minutes later. (This is the first time in ages that my temperature has been this ‘high’. This happened again today. I wonder if it is a sign of being on too much levothyroxine or if it is a sign that my thyroid is being attacked and is releasing a burst of thyroxine, or simply that I need more to keep my temperature up all the time...
I hope to see my GP tomorrow so would appreciate any help/ suggestions before that. I have read Hashimoto’s Thyroiditis Root Cause (Isabella Wentz) and am now fairly clued up about the information online but I find it so confusing in my confused state! Help! Please!
I know that GPs here in the UK are unlikely to recognise ‘adrenal fatigue’ so need help to know how to speak to the GP and what to ask for.
Thank you all and wishing you all good health and happiness.