Trying to conceive. Over medication of Thyroxin... - Thyroid UK

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Trying to conceive. Over medication of Thyroxine. Seriously need help.

SHOEGALSHO profile image
4 Replies

Really need some help. I was diagnosed Hypo in 2008. Gained 5 stone in a month. Was ignored by G.P's for years. Finally saw my amazing endo who increased my meds from 50mg to 250mg. Finally I stabilised! TSH was 0 but T4 stuck firmly at 16 for three years. I lost all the weight, my hair grew back and I had energy.

I've posted my about fertility issues elsewhere but no ones gotten back to me. I received my results back on Thursday and they have actually gotten worse??

I moved from 225mg too 200mg of thyroxine seven weeks ago.

My results have gone from TSH 0.03 T4 17 too TSH 0.03 and T4 20.9?!?!

My endo took the first results above along with T3 which was also hyper at that point. He checked for Graves' disease - nothing.

Why would decreasing my thyroxine make me more hyper? I'm confused and scared.

He decreased my thyroxine as myself and my husband are not convincing. My luteal phase is too short. This month was the worst by far. My body attempted to ovulate 5 times! Then once I did I had a luteal phase of just 6 days. My period lasted only 2 days and was light. I've taken a pregnancy test - negative.

I've now lowered my meds to 175mg getting bloods redone on the 4th before I see my endo again on the 8th.

Symptoms are palpitations, weight gain, tiredness, anxiety attacks, not being able to sit down and irritability.

Any help would be appreciated I'm so scared.

I've just weighed myself and I've jumped up another 5lbs! That's 10lbs in a week! I'm now petrified! Should I ask to lower the thyroxine 50mg???

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shaws profile image
shawsAdministrator

I am sorry that no-one responded to your last queries.

I am a bit confused myself because your TSH of 0.03 seems normal to me as some of us need a very low or suppressed TSH to feel well. A low or suppressed TSH doesn't mean we have become hyper. If we are hypothyroid and take too much medication, we would have symptoms of overstimulation but we wouldn't become hyperthyroid. They have already established you don't have Graves.

Adjusting your medication according to your TSH alone can cause problems for you as your body may need more.

I am no expert either but realise how important this question is so I am attaching a link to an archived website as Dr Lowe died two years ago but his information was always par exellence. This link deals with infertility, pregnancy and thyroid problems after pregnancy.

Excerpts:-

He wrote, for normal sexual function, thyroid hormone secretion must be close to normal.

However, among female patients under the care of my treatment team, high enough doses of T3 have often improved or completely relieved menstrual disturbances, PMS, and infertility without adverse effects—regardless of whether, before treatment, the women had TSH levels that were within or outside the reference range.

web.archive.org/web/2010103...

This is another link and the second deals with adjusting your thyroid hormones due to the TSH alone and not your clinical symptoms. The first question is how we should be treated.

web.archive.org/web/2010103...

hypothyroidmom.com/hypothyr...

SHOEGALSHO profile image
SHOEGALSHO in reply to shaws

Thanks so much! My endo believed my TSH should be around 1 but no lower than 2. He felt that the TSH being so high was causing my short luteal phase (8-10) days. He said my T3 was verging on hyper so that was another reason to reduce.

I've been getting palpitations and anxiety attacks to, I should have mentioned.

Xxx

Ansteynomad profile image
Ansteynomad

On those results, you don't look hypER to me, although without a FT3 result, I can't be sure. Your symptoms also look hypO to me, including the anxiety and panic atacks.

The NICE Guidelines for TTC are here:

cks.nice.org.uk/hypothyroid...

I'd press for a full thryoid panel and stop relying too much on the TSH. Mine suppresses as soon as I go near any thyroid meds (even levo) so I work of FT4 and FT3.

SHOEGALSHO profile image
SHOEGALSHO

These symptoms are all totally new to me. I'm defiantly not hypo. When I'm hypo my hair falls out, my nails break to the quick, my temperature drop really low, my skin gets very dry (I'm oily and getting acne on my back), I have no appetite (I'm hungry all the time just now). I never had anxiety and panic attacks until my thyroxine was increased and I've never had palpitations. When I'm hypo my blood pressure is so low it's impossible to take blood too. When I got my bloods done the other week I needed a plaster after and she was done in seconds.

So confusing! :(

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