Don't know what to say to my endo on Monday.......

[Jules_Essex]

So I'm seeing my endo for the 3rd time on Monday. I've only seen him privately before and this will be the first time on the NHS. The reason I've switched to the NHS route is because my GP will only consider prescribing my T3 if I see the endo on the NHS (seems bizarre to me as it's the same endo making the same recommendation for treatment but there we go).

I'm in a slightly difficult position as when I saw him at the end of April he agreed to me trialing T3 and I've been on 10mcg since then and my dose of levo has stayed at 125mcg. I've felt no improvement in any symptoms so far but I'm worried if I say that he'll want to take me off the T3 but I don't feel I've had a large enough dose as yet to feel any improvement anyway.

I did speak to him via his secretary in June time as I wanted to increase the dose but he wouldn't allow that and said I need to wait for my appointment and new blood work.

I've had bloods done a fortnight ago via the GP so I can take them with me to the appointment but unfortunately the lab the GP uses won't test T3 (even though the GP requested it they just sent back a sarcastic comment saying that they don't do it).

My recent bloods from a fortnight ago are:

Plasma T4 12.6 (range 6.3-14.0)

Plasma TSH Below range 0.08 mu/l (0.3-5.6)

The TSH was flagged on the bloods as 'abnormal' so I'm also worried that might scare the endo and he'll want me to come off T3.

I just don't know how to deal with the appointment as I don't know whether I should be truthful and say that the T3 is having no effect and ask for a higher dose as I'm guessing they might just say to me 'oh well if it's not working then come off of it'. Or do I tell a bit of a white lie and say there is some benefit but I feel I need a higher dose?

Also just to complicate things I saw a rheumatologist yesterday as my worst symptom is terrible muscle pains and I had more bloods yesterday and need to also have an MRI scan of my thighs and an EMG to rule out autoimmune connective tissue diseases.

[Clutter]

Jules,

Oral T3 lowers TSH and FT4, your endo should know this. A low FT3 result would give you ammo to request an increase in T3. You can order a private FT3 test from Blue Horizon or Genova via thyroiduk.org.uk/tuk/testin...

[Jules_Essex]

Thanks for the reply I had my T3 tested in April privately by this endo before I started T3 and the results were..........

Free T4 15.9 (11-26)

TSH 1.11 (0.35-4.5)

Free T3 5.1 (3.1-6.8)

T3 doesn't look particularly low and that was before I even started on T3 so I'm guessing it will be higher. I imagine they might test it again at the hospital on Monday but I don't think I'll have any ammo for saying I've got a low T3 result unfortunately