Doctors say they don't know whats the matter wi... - Thyroid UK

Thyroid UK

140,917 members166,037 posts

Doctors say they don't know whats the matter with me!!

Yve12rye profile image
8 Replies

Hi all, I went to the Gp back in Dec 2011 at his request for an "MOT" - I was a fit, active 61 year old male and felt fantastic! But my TSH level came back as 7.5. I was called in and it was suggested I have radioactive iodine treatment. This was done in 2012 and I have been feeling awful ever since! I went back to endo and after another two years had half of my thyroid removed. I have had numerous bloods done but all come back within "normal" range so have not been given any thyroxine despite having almost every symptom except TSH level. I have been back to a consultant endo yesterday and have been told that whatever is wrong with me is not my thyroid! I am taking tramadol for pain and have been told to go on antidepressants. I can be fine for a few days and then in bed for a few. I need to go to bed before 8 or I cannot function the next day. Suggestions please!!!!!!!!

Written by
Yve12rye profile image
Yve12rye
To view profiles and participate in discussions please or .
Read more about...
8 Replies
joyce59 profile image
joyce59

I am not an expert but a TSH of 7.5 would suggest an underactive thyroid or did you mean it was 07.5? Iam sure RAI would only be given for an overactive thyroid but maybe someone on here will confirm this.

bantam12 profile image
bantam12

Yes a little odd you had RAI and surgery for an underactive thyroid, did you have a goitre, nodules or some other reason the treatments were done ?

Yve12rye profile image
Yve12rye in reply tobantam12

I did have a goitre but this was never mentioned until I complained of its size 2 years ago which is when they suggested removing half

K1k1_belle profile image
K1k1_belle

Hi Yve12rye , read the following, it might help you going forward!!

experiencelife.com/article/...

K1k1_belle profile image
K1k1_belle

You could possibly have Adrenal Fatigue? Has the Endochronologist tested your antibodies or just your TSH?

galathea profile image
galathea

Whoa! Hold on there..... You followed the doctors instructions and went along with being nuked, to then feel awful and have them shrug their shoulders? Nooooo...... I hope you no longer follow their instructions to the letter.

What you need is a full set of thyroud hormone tests, so you have a starting point and can see where you are..... You were 'treated' for hyperthyroidism, but your symptoms say hypothyroidism..... All this smacks of hashimotos or there is another cause, where the tsh never fits in.... Here's the link.....mcgill.ca/channels/news/new...

Your doctor is likely to be fairly unhelpful, so a full set of tests is going to set you back about £100. Details of testing on the thyroiduk.org.uk homepage.

start watching out for your own health, you are the one with your best interests at heart......

When you have a full set of test results, put them on here, we will all pitch in...

X

Edited .... This link should work ok..... mcgill.ca/channels/news/new...

Clutter profile image
Clutter

Yve12rye,

Normal is a very broad range. Can you post your recent thyroid results with the ref ranges (figures in brackets after the result) to help members advise.

lolajone profile image
lolajone

Sandy do gp's / endos actually recognise this condition?

Not what you're looking for?

You may also like...

couldn't go through with the biopsy they sprung on me!

I had my thyroid scan today and I was already very very anxious prior to this and nearly didn't...
nichola79 profile image

I don't know what's wrong with me

This is my first post so please forgive me if this makes no sense. I'm trying to find answers for...
Shametoad profile image

Newbie with some results that I don't know where to start with!

Hi all, I've just had some test results back from medicheck after feeling awful for ages...all the...
Tiredtired profile image

Extreme hair loss and told to reduce levo

Diagnosed hypo in 2006/7 and put on 100mcgm of Levo. Everything fine apart from a couple of blips....
Maggiet profile image

Pity the doctors don't keep up with the changes.

Hi all, Just got myself up at 5.45am for a 7.15am. appt with my GP before I go to work (had to...
Moggie profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.