Doctors say they don't know whats the matter with me!!

Hi all, I went to the Gp back in Dec 2011 at his request for an "MOT" - I was a fit, active 61 year old male and felt fantastic! But my TSH level came back as 7.5. I was called in and it was suggested I have radioactive iodine treatment. This was done in 2012 and I have been feeling awful ever since! I went back to endo and after another two years had half of my thyroid removed. I have had numerous bloods done but all come back within "normal" range so have not been given any thyroxine despite having almost every symptom except TSH level. I have been back to a consultant endo yesterday and have been told that whatever is wrong with me is not my thyroid! I am taking tramadol for pain and have been told to go on antidepressants. I can be fine for a few days and then in bed for a few. I need to go to bed before 8 or I cannot function the next day. Suggestions please!!!!!!!!

8 Replies

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  • I am not an expert but a TSH of 7.5 would suggest an underactive thyroid or did you mean it was 07.5? Iam sure RAI would only be given for an overactive thyroid but maybe someone on here will confirm this.

  • Yes a little odd you had RAI and surgery for an underactive thyroid, did you have a goitre, nodules or some other reason the treatments were done ?

  • I did have a goitre but this was never mentioned until I complained of its size 2 years ago which is when they suggested removing half

  • Hi Yve12rye, read the following, it might help you going forward!!

    experiencelife.com/article/...

  • You could possibly have Adrenal Fatigue? Has the Endochronologist tested your antibodies or just your TSH?

  • Whoa! Hold on there..... You followed the doctors instructions and went along with being nuked, to then feel awful and have them shrug their shoulders? Nooooo...... I hope you no longer follow their instructions to the letter.

    What you need is a full set of thyroud hormone tests, so you have a starting point and can see where you are..... You were 'treated' for hyperthyroidism, but your symptoms say hypothyroidism..... All this smacks of hashimotos or there is another cause, where the tsh never fits in.... Here's the link.....http://www.mcgill.ca/channels/news/new-cause-thyroid-hormone-deficiency-discovered-218958

    Your doctor is likely to be fairly unhelpful, so a full set of tests is going to set you back about £100. Details of testing on the thyroiduk.org.uk homepage.

    start watching out for your own health, you are the one with your best interests at heart......

    When you have a full set of test results, put them on here, we will all pitch in...

    X

    Edited .... This link should work ok..... mcgill.ca/channels/news/new...

  • Yve12rye,

    Normal is a very broad range. Can you post your recent thyroid results with the ref ranges (figures in brackets after the result) to help members advise.

  • Sandy do gp's / endos actually recognise this condition?

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