Iron dosage question?: I can't hold on to... - Thyroid UK

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Iron dosage question?

Jessiepup profile image
11 Replies

I can't hold on to Ferritin levels . I had an iron infusion last December which had all but gone, back to 10 now.

I asked my doctor if I could double the dose of iron I am taking and she said no.

Anyone know of a good reason why someone like me can't do that? I am hardly going to end up with too much?

Waiting for referral for another infusion but could be weeks.

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Jessiepup profile image
Jessiepup
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11 Replies
humanbean profile image
humanbean

You don't say how much iron you are actually taking. My guess would be that all iron supplements have to go through the liver and they can cause damage to the liver if taken in excess.

What kind of iron supplements do you take, what dosage per pill and how many times per day do you take them?

To help your body to absorb the iron you need to be taking 500mg-1000mg vitamin C with each iron pill.

Jessiepup profile image
Jessiepup in reply tohumanbean

I have been taking ferrograd slow release one a day, but am trying spatone now to see if I get better effect. Hadn't thought about it passing through liver.

humanbean profile image
humanbean in reply toJessiepup

If you are using slow release iron this could be why you are not making any headway with absorbing iron. According to the BNF (British National Formulary - the publication doctors use to determine what they can prescribe and at what dosage) :

Modified-release preparations

Modified-release preparations of iron are licensed for once-daily dosage, but have no therapeutic advantage and should not be used. These preparations are formulated to release iron gradually; the low incidence of side-effects may reflect the small amounts of iron available for absorption as the iron is carried past the first part of the duodenum into an area of the gut where absorption may be poor.

Source : evidence.nhs.uk/formulary/b...

Have you ever tried something like ferrous fumarate? I was prescribed this by my doctor but then discovered I could buy it without a prescription, which is a lot more convenient for me. I take :

210mg ferrous fumarate, one pill three times per day. I take each iron pill with 1000mg Vitamin C. I buy the ferrous fumarate in boxes of 84 pills which is enough for 28 days. It costs roughly £4 per box. Boots insist on a prescription but many other pharmacies don't, so shop around.

Jessiepup profile image
Jessiepup

Thank you - I gave started Spatone. I do feel a bit better and hope it carries on.

There is no quick fix it seems .

Thanks for your help

humanbean profile image
humanbean in reply toJessiepup

Spatone might help. But it only has 5mg of elemental iron per sachet. The pills I mentioned have 69mg of elemental iron per pill - so in total in a day I have been taking approx 210mg of elemental iron per day. The Spatone and the ferrous fumarate aren't totally comparable because the iron in the Spatone is allegedly more easily absorbed than that in the pills. But there are plenty of people who have failed to raise their iron stores on Spatone, so be prepared to have to make another change.

HashiSpain profile image
HashiSpain

Happened the same to me until I started treating my leaky gut sindrome: which includes quitting gluten temporarily as well as treating candida. It has worked a lot for me, now I have now troubles with absorption

Jessiepup profile image
Jessiepup in reply toHashiSpain

Hi, Hashispain, I have been Gluten Free for six years, I have no gut symptoms or candida any more.

I have had my gut looked at by mri , colonoscopy and endoscopy and it all looks perfect.

I don't know what the answer is.

HashiSpain profile image
HashiSpain in reply toJessiepup

Yaiks!!!! I have no idea of what could be then...

ivy77 profile image
ivy77 in reply toHashiSpain

What symptoms you have from candida? How do i know if i have it?

ivy77 profile image
ivy77

Hey hello, i have the eame issue! Yes you can take 200 mg of iron, why not.....these docs really know nothing. I realized by myself when i stop supplementing my iron will move down,and i wonder these docs have not heard of that case and dont know it when you visit google and come across person like you and me, so etimes i really wonder how their logic works,and that i am so special that noone else in the world has similar problem:-)

You must take pills, i think infusion cleans up faster from the body, i had it once and after it you should supplement for the rest of your life , i am supplementing for 6 years and never had too much of it so dont worry....you should take it.....also if its too much i am sure you would have dhiarrea...or body would not absorb

Jessiepup profile image
Jessiepup in reply toivy77

Thanks ivy, someone suggested iron Bisglysinate and on reading up it is very well absorbed and does not cause toxicity in the liver. I am going to start taking 200mg 3 times a day.

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