I was diagnosed with thyroid cancer in 2004 they too thyroid out am on 125mg thyroxineevery other day and 150mg.

[mogsey]

I have been feeling unwell for a time not sleeping hypo!!...bad diahorea pouring out off me!!...my results have come back high t4 levels high 33pm ....have just walked out doctors surgery my doctor is so blasie told me last week when I told him symptoms I should not drink coffee!!!...I have asked for a call back from another doctor this afternoon..help worried sick

[shaws Administrator]

I am sorry you are feeling so bad. Do you have a copy of your latest blood test results and post them with the ranges for comments.

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I think it's about time they gave you some decent medication as you are thyroidless. You may be sensitive to the fillers in levo. I who only have hypothyroidism was much more unwell on levo. I am well now on T3 alone but was also fine on NDT. You may not be converting T4 to sufficient T3 for you to feel better.

[mogsey in reply to shaws]

Sorry see my post below!!..feeling overwhelmed

[mogsey]

Will try and post results thanks for conning back to me have rung my oncologist the Secretary was very understanding!!!..am awaiting a call back!!...am so scared my cancer is conning back!....

[Hidden]

Could it be you have gone hyperactive! I had those symptoms when overactive thyroid

[mogsey in reply to Hidden]

Yes hyperactive!!...thanks I need to get it sorted it took them a year to diagnose me in the first place, and I feel at the moment like I did then..thanks for comment

[shaws Administrator in reply to mogsey]

I hope they give you an early appointment to put your mind at rest.

[mogsey]

Results for blood test I had on the 7th July t4 level 33ppm1/ l high......serum tsh o.o1 blood glucose 5.5mom/l .....

Renal profile get units mill can anyone help please

Thanks

[Clutter in reply to mogsey]

Mogsey, Your elevated FT4 indicates over medication. Diarrhoea, anxiety and sleeplessness are hyper symptoms and are caused by over medication. Your TSH remains suppressed and should continue to do so even with a slight decrease in Levothyroxine. You could stop Levothyroxine for 3/4 days and then reduce to

100mcg/125mcg alternate days.

When were your thyroglobulin and thyroglobulin antibodies last tested? It is rare to have a recurrence of cancer until thyroglobulin is >6.

Have you been told your TSH must always be suppressed? I've been advised that mine should be suppressed for 5 years to avoid recurrence and assume I will be put on a replacement dose after that.