Positive for antibodies: So after waiting and... - Thyroid UK

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Positive for antibodies

mistydog profile image
14 Replies

So after waiting and chasing and giving blood umpteen times, the idiot endo phoned me today with the news that yes, my blood test came back positive for both antibody tests. I don't have the actual results, but what does this mean now? Do I have Hashimotos? And if so, are all Hashis sufferers here on the gluten free diet?

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mistydog profile image
mistydog
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14 Replies
Clutter profile image
Clutter

Mistydog, If you have positive thyroid peroxidase antibodies you have Hashimoto's. Not all Hashi's patients are gluten free but most report that their antibodies fall when g-f and bloating and constipation improve. A couple have said they didn't notice any benefit and didn't have adverse reactions when the reintroduced gluten.

mistydog profile image
mistydog in reply toClutter

Thanks, Clutter. It's good to have a definite diagnosis. I've been cutting it down but not being strict about it. I'm off on holiday today until Tuesday but I will have a good look at it all.

spindrift profile image
spindrift

Hi mistydog,

I was also have hashi's. I gave up dairy and gluten/wheat and it felt like 30years of symptoms disappeared. I saw a gastroenterology as they thought with having hashi's that I might have also had coeliac disease but those tests came back negative. When I became pregnant I found that I was fine to eat dairy, wheat and gluten, however my daughter is now just turning four and I am finding I am once again reacting badly to wheat and gluten. I am not cutting it out completely but over the last week I have severely reduced my intake of wheat and gluten and my symptoms are once again improving and I have lost 3lbs to boot.

I would say give a diet reduced/free from wheat and gluten a try and see how you feel. If you feel better then stick with it but if you feel no different then there is no sense in depriving yourself as it can be quite restrictive without proper meal planning.

Cyia profile image
Cyia in reply tospindrift

Hi spindrift. I too have positive antibodies anti tpo 500 tsh 2.2, just read u conceived, did u conceive with high anti tpo. I am just on levothyroxine. Can you please guide.

mistydog profile image
mistydog

Thanks, Spindrift. I read a list of things to exclude and it was very restrictive! I'll try cutting out things one at a time and see how I do. Thanks for replying

juls profile image
juls

hmm now this is interesting i also had a positive result for peroxidase antibodies and was told i dont have hashimoto,s .?now back to being confused. hmm ?>

Marz profile image
Marz in reply tojuls

There is a category to the right of this page for Hashimotos - maybe you will find something helpful there. Normally if you have raised anti-bodies for TPO it confirms Hashimotos. You could always ask for a scan to confirm. I think your GP is probably one of the many who thinks it is irrelevant if you have Hashimotos - as they think the treatment is the same. WRONG - auto-immune conditions need a Holistic/Functional approach where the health of the whole body is considered and not just the thyroid. Gut problems are usually linked....

juls profile image
juls in reply toMarz

what does a scan prove. ? i had all the works done at the hospital scan to. i asked do i have them due to a high tpo . he said no. so i went along with that . now i read if there high u do . lol i give up . but thanks for the reply any way .

Clutter profile image
Clutter in reply tojuls

Juls,thyroid peroxidase antibodies mean autoimmune thyroid disease (Hashimoto's). I think doctors just don't like to call it Hashi's and call it autoimmune thyroiditis. Not sure why, as Hashimoto is the bloke who discovered it, the same as Dr. Graves discovered autoimmune hyperactive thyrotoxicosis (Graves).

Saorsun profile image
Saorsun

Hi Mistydog, I went totally gluten free six weeks ago, my antibodies have come down and I feel loads better!

this 20 minute video helped me understand why gluten free helps reduce antibodies. youtu.be/IvUgcLQOUSA hope it helps you too.

mistydog profile image
mistydog in reply toSaorsun

Thanks Saorsun. I just watched it and it made a lot of sense. Iddon't have too much problem with constipation although have recently been on some meds that have not helped in that department! But I have the other hypo symptoms so I definitely think it's worth giving a go.

pumpkinsfaith profile image
pumpkinsfaith

My biggest problem is my digestion, it hurts to eat ANYTHING. I have tried so many things. Recently I v been trying this stuff called digesta quer. Look it up, has helped a lot.

mistydog profile image
mistydog in reply topumpkinsfaith

Sorry to hear that you are having problems with digestion. I don't think it is a problem for me at the moment but I will bear it in mind. I hope you find something that works.

pumpkinsfaith profile image
pumpkinsfaith

It pretty much controls my life. No eating out, Very painful halfway through eating. I drink lots of blended fruit, rich in enzymes.

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