In update to my previous post about my low B12 (https://healthunlocked.com/thyroiduk/questions/130857104/b12-injections-vitamin-d-and-lack-of-gp-understanding-what-to-do-now), I mentioned that in my previous GP appointment I hadn’t taken control and confronted his assertions that I didn’t have B12 deficiency and it was normal. So based on hampster1’s advice, I’ve wrote a letter to my GP which I dropped off yesterday.
In the letter I explained about the ‘Protocol for treatment’ on the B12d.org website, print outs from a couple of the pages, the new BCSH guidelines and a number of other documents, which I have to admit I’ve forgotten what they were. I also picked out a number of points, mentioned my 182ng/L (180-1000) results, combined with symptoms and a connection with b12 deficiency in the family (undiagnosed). I said that further tests should be done such as anti-intrinsic factor, Homocysteine and potentially plasma MMA.
I feel like everything is interconnected at the moment. I have low B12, and I think maybe low folate (5ug/l – sorry no range provided). My Vitamin D has dropped from initially 50 nmol to just under 35 nmol over a year, despite taking 2,000iu of D3 per day (I’m now trying 4,000iu a day, despite GP telling me 800iu per day was enough). I always been a cold (in terms of body temperature) person, but do feel like over the last few years, I’ve got colder. My Rosacea appears to have got worse over the last year or so. This could all be connected with low stomach acid, or indeed the 5 or so, plus 2 large mercury (amalgam) fillings I have had for many years (which I’m thinking about getting replaced). It seems to be one big puzzle as to what is causing what, and what is symptom of merely something bigger.
Anyway, I’m not actually sure what will happen next. Maybe my GP will write back and ask me to make an appointment to see him, maybe he will simply ignore me and throw the documents in the bin. So I have booked an appointment with the same doctor two weeks from now to discuss this if I haven’t heard from him. However this could be another waste of time. It’s left me feeling frustrated since it’s all waiting, waiting, waiting.
Plus it's fighting people all the time, family/friends who think I'm causing too much trouble, "were in England not Japan" (when mention of their higher ranges), and just the whole process of having to wait ages for an appointment.
So should I be doing something else/different? Or do I just now wait?