On this day last year, I was discharged from the Endocrinology Clinic at my local hospital with a letter that read:
“We have been following you for approximately four years with a number of symptoms that have been difficult to manage or to attribute a cause to. Previously you have tried Liothyronine to temporary benefit and ongoing iron supplements. Despite this, you continue to feel very unwell.
We have performed extensive investigations for possible hormonal causes of your symptoms without finding an answer. We have reached the limits of our ability to investigate further and still do not have an explanation for your symptoms or treatment to make them better.
At present your thyroid function is normal TSH (0.35-6) 3.19, FT4 (9-26) 14.5, FT3 (2.8-7) 4.5. There is no biochemical indication for further T3 treatment, but I will leave it to your GP’s discretion as to whether he is prepared to try Liothyronine again.”
Instead, I persuaded my GP to try what had never been tried in those four years, a full replacement dose of levothyroxine. I started on 75mcg, upped it to 100mcg after six weeks and then to 125mcg after another three months.
I am now pretty much well. I have lost 20lbs, I have more hair than I know what to do with, I no longer have active psoriasis or IBS, my crippling muscle and joint pain has all but gone and I am living a full and active life and my husband will tell you I am a completely different person!
In fact, after two late nights at the weekend and a day out yesterday, I’ve just dragged him out of bed so we can go and climb a mountain!
Thank you to this forum (and others) for giving me the knowledge and the confidence to fight this to the bitter end. It can be done, you just can’t rely on the NHS to do it for you.