Good morning fellow suffering ladies and gents. I'm pretty sure that all of us here are literally so sick of being ill. I know I've had enough. Feeling ill is one thing, feeling ill and being dismissed by doctors and consultants that know too little and self medicating on thyroid meds and steroids is another game altogether and feeling helpless and frustrated as well is just not right. Below is the email address for the prime minister's office at number 10 Downing street. Might I suggest that we all send an email over the weekend and tell our own story and bombard them in one large cry.There have been many petitions already but what I'm suggesting is a coordinated flood over the next 2 days days direct to our government. Please share and post where ever you can and get your families and friends involved on your behalf with their opinions too. thank you.
Wow Jan ! You caught us in the middle of a big breakfast discussion on this very subject of ...What can we do?? I'm behind you all the way .I am reading "Stop The Thyroid Madness " for the second time now that I am better informed and it is making me realise we have to stand up and shout !! ......this whole scandalous disgrace must be exposed. I will willingly support you ...Thanks for posting the info.
Thank you Margit. We've had a great response already from each group on face book as well. If you can use the link and email, also get your family to use it as well and say from their perspectives that would be great. Any where else you can post this would be great, we all need to shout together this weekend and wake up the government! Xxx
Hi Jan61, I hear your frustration and have often felt the same, but I do feel that this weekend to flood No 10 is too short notice. I am feeling utterly drained at the moment and wouldn't be able to get a comprehensive or comprehend ive enough retort together in time.
Perhaps an agreed date in a month or two, so the good folks on here can get something worthwhile together, Perhaps it could be known as our own "D DAY"
It is well underway fatfeet 1. I am so sorry you are not in the right place for it. Do you have any family that could use the email to have their say? We will be co ordinating again soon as well. I hope you improve soon xxx
Where did my reply go ? Oh i give up its bad enough beeing fuzzy headed and composing a reply with out them dissapearing !!! also not getting alerts !!! spose it could just be me
I hear what you say Flatfeet and realise that we need to make a big impact with this and maybe it is too hurried as there may be people who want to contribute who cannot give time to it this weekend.
On reflection I think it would be better to give it more time so we can think it through properly and am glad you have pointed this out.
May be others will comment.I will however begin to put something together ...especially as it has suddenly gone dark and the heavens have opened as expected......first crack of lightning and thunder ...so gardening is off!!!!
Sorry to hear you are struggling,as when you are keen about gardening it really hurts when you can't be the gardener you once were.I know I have to do it in small sessions now......did manage to fill a big bag with weeds
after our thunderstorm passed so am getting pleasure from the borders looking good...so full of colour.
I think you need to edit your original post and put in the info about the 1000 character limit, not just here but wherever else this is posted. Otherwise people could spend hours putting together huge tomes but their email would be rejected or truncated.
Thank you all, we are going to do this again soon but on a bigger scale co ordinating with many other groups to give more people time to get on board. Will let you all know dates. In mean time please keep this going get your family and friends involved with sending in emails of support please. X
Thank you. I've now had my say! Requested the next generation of GPs is not trained by those arrogantly protecting their backs and quoted Dr S on reference interval not having been validated! Yes! I've also bookmarked the web page in case I want to say it all over again next week. And will keep on saying it until someone hears my cry.
I agree...It would need a lot of organising and input from many people.Some of us can only speak with any confidence about our own thyroid journey,though others will have a lot more knowledge.It would be quite a challenge wouldn't it?....and also an achievement!
Sent, so difficult to condense into just 1000 words. I specifically mentioned the lack of training and understanding I experienced at the hands of a trainee GP at a Manchester hospital and his refusal to look at the FT 3/4 readings that were presented stating the TSH was all that mattered :/
Yes that's some very good points that you raised there. Its interesting that the guy that came up with the tsh test in the first place has now stated that its floored and testing by temperature is far more accurate. X
Hmm when I mentioned my low basal temperature and asked him what it indicated the stupid trainee stated that it must be broken ! What sort of chicken dropping answer was that! , my TSH was .42 boarder line, I went private after that but did send a letter of complaint to the complaints department at the hospital . That was in March, so far it has not been even acknowledged. I am medicated now but early stages and still a bit up and down. Bloods today so we will see . X
This is a great idea and I will be sending mine. I think a drip feed of emails would be good for those who need more time to put something together. Can we post a collection of them somewhere? That would be so cool
Anyone else received the reply from Downing Street via the post today? Thanks for contacting us blah blah Mr Cameron feels that the Dept of Health are best placed to respond to the matters raised so your email has been forwarded on to them!!! They are the bloody problem....I thought the whole point was to highlight the issues that we have?! Grrrrrrrrr
Yes that's seriously NOT good enough, that was as you said the point in contacting him. I think we may have to step this up and hit them a bit harder! X
If we can I would love to!! Also really annoyed at the waste of resources as the letter was sent out on good quality paper, what is wrong with an email? Double Grrrrrr!
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Let's take some action!
Don't get obsessed with your thyroid.
