1st visit to endo after long wait, not sure wha... - Thyroid UK

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1st visit to endo after long wait, not sure what to make...

markg73 profile image
6 Replies

Went in with my self gathered data, this consisted of symptoms, basal temp tests, different levels of tried Levo etc.....

He looked at my records and agreed something maybe not right, not sure what he concluded but he decided I should go for another blood test. He tested for the usual suspects and cortisol. He then said he will put me in for a MRI scan to check my pituatary gland. I'm not sure why! He then said " I'll see you in 4 months".

Got letter through door today to tell me that " all seems normal" and continue on 100mcg Levo.

I guess I'll be waiting on my MRI scan?! ..Also, I could have told him my results before the letter had come through the post because everything is always normal!

If the scan comes back as ok, what is likey to be the next step?

Is the standard endo practice too?

Input appreciated.

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Heloise profile image
Heloise

Mark, usually hypothyroid patients need to correct their deficiencies differently than other people. Do you have anything in print you can compare with the list from Stop the Thyroid Madness site? stopthethyroidmadness.com/l...

I've been posting short videos that pertain to low thyroid for 21 reasons if you care to post whether you think it's an autoimmune attack (tests on that?) or a conversion problem if you know your FT3 results. I don't know if testosterone is a problem but you can get an idea.

stopthethyroidmadness.com/l...

youtube.com/watch?v=UMa_8oh...

markg73 profile image
markg73 in reply toHeloise

Hi Heloise,

Thanks for the reply. I had my last test done in January and TSH was 0.5 ( 0.5 - 3.9 mU/L), FT 4 was 13 (10-19 pmol/L) and FT 3 was 5.30 ( 3.3-5.2 pmol/L) which was deemed high. My antibodies are within range also.

I decided to have cortisol tested also but this was the standard blood test, my guess is the endo will now move on from that as the letter said all was "normal". I'm thinking going private with a 24 hr test but not sure how the endo will take this.

I have a horrible feeling that if my MRI comes back as ok I'll be sent off packing to some other clinic to get diagnosed with something else. I hope this isn't the case. He seemed very old fashioned to me but I'll give him a chance.

I'm going to pick up my latest tests tomorrow and see what this brings, this will include the cortisol test.

Thanks

Heloise profile image
Heloise in reply tomarkg73

You and one other person only have had a high FT3 for as long as I've been reading this blog. It's unusual and should make you think you are over medicated but you haven't really stated how you feel. Were you once hyper thyroid? Is the cortisol test a blood test? You need the saliva test. Read the Optimal Labs I posted right at the top talks about that cortisol test.

youtube.com/watch?v=73d9KGY...

#15 also addresses high cortisol

markg73 profile image
markg73 in reply toHeloise

Hi, Im not hyper and havent been whilst these readings exist. On some of my previous posts I've stated my feelings, which really point to hypo. It is odd that my FT3 is in the High range, Should this suugest that I should be ok?

The Cortisol was the blood test variety, these results are in but the hospital need to send a form out for me to fill in so I can get my results - Never had this bother with the GP.

Just waiting on my MRI scan appointment now.

Thanks

Heloise profile image
Heloise in reply tomarkg73

I've been trying to remember where I found that a high FT3 may mean over conversion or some other problem. I always thought you would feel great with a high FT3 much like a diabetic feels so good with a high sugar count and yet it is damaging. I'll try to find the info for you but I don't think the cortisol test you took is necessarily informative.

markg73 profile image
markg73

Hi Heloise,

Thanks for the reply. I had my last test done in January and TSH was 0.5 ( 0.5 - 3.9 mU/L), FT 4 was 13 (10-19 pmol/L) and FT 3 was 5.30 ( 3.3-5.2 pmol/L) which was deemed high. My antibodies are within range also.

I decided to have cortisol tested also but this was the standard blood test, my guess is the endo will now move on from that as the letter said all was "normal". I'm thinking going private with a 24 hr test but not sure how the endo will take this.

I have a horrible feeling that if my MRI comes back as ok I'll be sent off packing to some other clinic to get diagnosed with something else. I hope this isn't the case. He seemed very old fashioned to me but I'll give him a chance.

I'm going to pick up my latest tests tomorrow and see what this brings, this will include the cortisol test.

Thanks

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