Almost a year ago I had 1/2 of my thyroid & a large mass removed from my thyroid removed. I was taking 75mcg of levothyroxine prior to the surgery even though the endocronoligst was skeptical on whether or not I actually had hypothyroidism and afterwards they put me on 100mcg of levothyroxine even though I requested a smaller dose. Since then I've felt like my eyes were going to pop out, my scalp was really itchy, I gained a bunch of weight, my hair was falling out and have had issues with being able to stay asleep. I had regular blood tests done and was told "everything was fine" each time. I started taking multivitamins and those symptoms seemed to have levelled out. But my cycle has gone wacky recently (heavy, heavy bleeding) and over the past two weeks I was unable to keep my eyes open, yet if I tried to nap I was completely unable to. I started having mental fogginess again, yet my heart was racing. I went to the GP again Monday and told her the new developments. She ordered an immediate blood test. I called for the results today and was told again that everything was fine. I went in to see the GP today and she told me that none of my thyroid levels have changed at all from the last time I had the tests done. I told her I could no longer take the levothyroxine - that yesterday I didn't take it at all as I felt like it was poisoning me and today I took a 1/2 dose and felt better than the rest of the week. I asked if perhaps my remaining thyroid was kicking in and I was getting too much as a result. She thought that could be a real possibility even though my blood tests didn't show elevated levels at all and directed me to stop taking the levothyroxine for the next two week, of course if I feel a lot worse then to go back in to see her right away and she'll get me in to see an endocrinologist again. To NOT have to take thyroid meds would be of course ideal for me, but after being on 100mcg of levothyroxine for a year I am a bit worried about just stopping cold turkey. Has anyone had any experience in a similar situation? Thanks!
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