Hi first time on this site but wondering if anyone can help me.

[paulam]

I had a total thyroidectomy 12 months ago for multiple benign nodules. I am an eltroxin and once i got settled on it 9 months ago i have had no real problems untill of late. I have tingling in my hands and feet and all have grown in size.on top of that my left hand is a full half centimetre bigger than my right and my left foot is a little over a centimetre bigger than my right foot. Also my eye sight has deteriorated rapidly most of the time i feel im looking at things through water and it seems to be getting worse daily.Also i once again feel a lump in my throat?has anyone out there had experiences like these would really appreciate your opinions.

thanks

paula

[HarryE]

Hi there! What dose are you on? And do you have your latest blood test results?

[paulam]

112mg daily that is 100mg/125mg alternate days. can't remember about 1.2 but it is exactly the same as it was before i had a thyroid problem luckily i had it taken during routine tests a couple of years ago

[HarryE in reply to paulam]

That's not a very big dose for someone without a thyroid at all! You really need free t4 & t3 tests to draw any meaningful conclusions.

[paulam]

Sorry your messages keep coming in late here. I know it sounds small but i am only 48kg have you ever heard of peoples extremities growing on eltroxin ? it may not have anything to do with it??

[HarryE in reply to paulam]

It might not, but then again it might. I haven't heard of it myself, but the variety of thyroid symptoms is huge. Someone else may have heard of it

[paulam]

hardly a tumor of the pituitary gland?? I've always wondered if I ever had a problem with the thyroid as my bloods were always at the same level thereabout I never had any symptoms. just felt a lump one day tested the following day and it showed 2 small nodules on one side a month later 7 large on one side and five on other and 2 weeks following 11 very large on one side and 8 on other and surgery done immediately all benign Thankfully. What do you think

[paulam]

Forgot to mention my CEA was also elevated not dramatically 8.9 had colonoscopy etc etc all clear

[helvella Administrator Thyroid UK]

Your question makes me think of Marfan Syndrome (and, as I saw the link while looking up Marfan's, Loeys–Dietz syndrome as well).

I really don't think you have these, if only because they are usually seen in childhood, but both seem to affect hand/foot sizes (indeed, whole body size, but distinctively over-long hands and feet), both affect eyes, and in both hormone levels are inappropriate.

I think you need to be seen by an endocrinologist who specialises in these things - not a typical diabetes and sex-hormone person.

en.wikipedia.org/wiki/Marfa...

en.wikipedia.org/wiki/Loeys...

Rod

[paulam in reply to helvella]

Thanks a million havent heard of these before will look them up. Yeh I'm far from a child though can still behave like one

[Barbaraj]

The growth of your hand and foot would indicate that you need to have your pituitary gland investigated over and above your thyroid problem. Hope this helps. Barbaraj

[paulam]

Thanks Barbaraj

[mumcat2]

It also soundsit might be ore like a pituitary related problem to me. I am only a degree scientist but have had pituitary problems for 40 years, and it might be something like a small tumour (hence your sight issue) that is producing growth hormone. This would cause acromegaly, a condition where extremities and the face grow disproportionately. I had a tumour like that, which produced prolactin and was growing into my optic chiasma, over 40 years ago. I had it surgically removed and things basically went back to normal. Good luck in your search!

[paulam]

Thanks mumcat2, nice to know things went back to normal for you,to be honest i feel my orbital bone is above my eye brow but no one else seems to notice it.The more i read about acromegaly the more convinced I am that thats my problem but it all happened so suddenly (since last september,three months after thyroidectomy). Do you remember did you have a tingling sensation in your feet and hands?

[mumcat2]

I did - I'd also been diagnosed with migraine regarding the headaches I'd been having. Bearing in mind I was only 15 and in the run-in to O levels, it was just thought to be stress-related,though being bullied at school at the time certainly did more than its fair share to up the stress! These things are definitely sent to try us.