Does anybody suffer with throbbing in arms/legs... - Thyroid UK

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Does anybody suffer with throbbing in arms/legs/feet & really achy muscles all over ?

Sutton profile image
14 Replies

I've had hypothyroidism & fibromyalgia for 13yrs & take 125mg levo. I seem to go through stages when my muscles are really painful & I get awful throbbing all over/heavy headaches. I was wondering if perhaps my dosage of levo caused this (too much/too low) - had blood test last week which was ok (although I don't have results to give yet). In the last 9 months I've also had 4 nocturnal seizures so also take Epilim 300mg daily since Nov - so I'm not sure if this is a thyroid or seizure medication problem. However the on/off throbbing problem was there before the seizures - can anybody associate with these horrible uncomfortable symptoms particularly worse at night ? Thank you

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Sutton profile image
Sutton
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14 Replies
shaws profile image
shawsAdministrator

It will be interesting to see the results of your most recent blood tests results. I think you may be undermedicated. According to Dr Lowe, fibromyalgia could be due to thyroid hormone resistance.

web.archive.org/web/2010103...

Sutton profile image
Sutton in reply to shaws

Thank you Shaws for your reply - when I am able I will post my test results. I have read the article above too. Thanks again.

humanbean profile image
humanbean

I would suggest getting vitamin D levels tested. If you are deficient it can cause muscle and joint pain. Although your symptoms sound rather more serious than just a vitamin D deficiency I must admit, unless you are desperately deficient.

Another problem may be low iron.

Sutton profile image
Sutton in reply to humanbean

Hello human bean - I do take Vit D as was advised by GP also B12 too daily - I have had anaemia in the past but all my recent tests have come back ok - but it might be worth taking again to see if this helps. I am going to ask for my last two blood test results & will post when I have them. Thank you,

Stourie profile image
Stourie in reply to Sutton

Hi what were your actual results because ok for your doctor is maybe not ok for you. How much vitamin d are you taking?

Sutton profile image
Sutton in reply to Stourie

I Take 1 800u of Colecalciferol (D3) daily - but haven't had a D3 blood test since last Oct - I've rung the surgery to have print out of recent tests (1 in Nov & 1 -2 weeks ago) so will post these ASAP .

Stourie profile image
Stourie in reply to Sutton

Hi Sutton 800 is only a maintenance dose. I doubt if that is making much difference but you will just have to wait for your results.

Sutton profile image
Sutton in reply to Stourie

Ok thank you - I'll send results when I get from the dr .

in reply to Sutton

I had muscle & bone aches before I sorted VitD, it may help ease things a bit. (4000iu daily worked for me, I don't take any summertime 'tho).

sciencedaily.com/releases/2...

Sutton profile image
Sutton in reply to

Wow so only taking 800u daily is perhaps very low - do you think it would benefit me to take at least 2 to start until I have the results from the blood tests? Stourie also said 800 was a starting dose! Obviously away from levo maybe at lunchtime time ?

puncturedbicycle profile image
puncturedbicycle in reply to Sutton

How low were your vit d levels? If you were deficient and everything else is okay (calcium particularly) and you have no reason to avoid it, you need a loading dose to pump you full of d and get you back up to normal. Guidance here: imperialendo.com/for-doctor...

Sutton profile image
Sutton in reply to puncturedbicycle

I'm waiting to collect my blood results - but thank you for these guidelines which will be helpful when I know the results.

rosetrees profile image
rosetrees

Hello Sutton. I can identify with those symptoms and for me, I think, they are as much adrenal related as thyroid. Have you considered having the saliva cortisol test done by Genova UK? thyroiduk.org.uk/tuk/testin...

There's a good adrenal questionnaire here which might help you decide if you think adrenals might be an issue adrenalfatigue.org/take-the...

Sutton profile image
Sutton in reply to rosetrees

Thank you Rosetrees I will look into this

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