Experiences with

Epilim

[/i] https://www.gov.uk/drug-safety-update/valproate-belvo-convulex-depakote-dyzantil-epilim-epilim-chrono-or-chronosphere-episenta-epival-and-syonellv-new-safety-and-educational-materials-to-support-regulatory-measures-in-men-and-women-under-55-years-of-age

www.medicalnewstoday.com/articles/317911#Treatment-and-coping A line item reference from "there was insufficient and inconclusive evidence to make recommendations for the following" in the discussion could include ketamine,, Oxcarbazepine, Lamotrigine, topiramate, Depakote, Sodium valproate, divalproex sodium, Epilim

In 2016 taken off Epilim, almost Parkinson's disease shaking hands, have been tested twice for PD both negative, now something similar? I have JME epilepsy since 1970, 400+ seizures, was told in July 2021 "next seizure probably be your last"!

In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking

Was not sure whether to make a fuss or not as they have previously also given me the wrong dose of epilim and I had to go back and I am only a few short but I only get just enough of the medication each month.

A quick Google shows that this may be due to Epilim. I have never been advised to take folate supplements in all my years on Epilim. Is it usual for neurologists to recommend regular folate supplements with Epilim and to regularly check vitamin levels?

My daughter is on Epilim Chronospheres 600mg twice a day. Are any of you on the same and have had strepsils before? If so which ones are safe for her alongside this medication. The Honey & Lemon ones say they contain alcohol so have avoided them. Thank you

I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due to weight gain if there was an alternative medication I could go onto.

and has taken Epilim for 30 years combined with Vimpat for last 4 years. I realise this is very specific but does anyone know how I can find this rare endocrinologist who understands such a situation and will be understanding ?

I had previously been on lamotragine and epilim. All of these drugs give me the most awful itchy rash which a good dermatologist has failed to be able to resolve and it's getting worse. Respiridone does really help with my mood and sleep but I can't cope with this rash.

My son 11 yo got epilepsy and autism. 10 weeks ago he started taking the prescribed Epilim liquid, starting with 2 ml per day and gradually increased the dose to 10 ml per day. Starting from a 4 ml dose we started noticing severe side effects. At 8 ml this became very concerning.

Is there some sort of link between the effects of the Epilim and the effects of the AZ vaccine?

I took Lamictal for my JME epilepsy, with Keppra, Epilim and Fycompa, my dentist was always ticking me off for years, I was paying for expensive fillings, crowns, etc, I wondered why, even going onto electric toothbrushes, still severe 'slap on the wrists' "Why don't use ...." blah, blah, then when

So could it be just the same side effects of the Epilim/Lamictal and Vimpat/Briviact that is the trouble?

She moved through Lamotrigine to Epilim. She missed a few doses that resulted in three tonic clonic seizures. As a result, her neurologist prescribed an increased dose of Epilim. She is currently on 500 mg Epilim in the evening and 300 mg Epilim in the morning.

In that time, on Epilim and lamictal, side effects of Epilim, meant I was tested for Parkinson's disease, severe shaking of hands, [negative] (my father had had Parkinson's){one. two} then new specialist {three} in December 2016, I smashed my chest, broke at least 5 ribs in February 2017, [tried suicide

I also have generalised seizures occasionally too and have changed medication to epilim which does not stop them.

I have been following the 4 month change over from keppra to epilim because I had a seizure Jan 2020. I took the last keppra on friday 29th Jan 21 and had a seizure on Sunday 31st Jan.

I have epilepsy and been using medication for 40yrs, sodium valproate/epilim. Just discovering it can stop vitamins and minerals being absorbed into the body properly and cause Thyroid problems.

My son has been prescribed Levetiracetam in addition to Epilim Chrono because his seizures continue. I’m unsure about this - especially as it seems to make him very irritable. He has a tendency to depression and irritability anyway as he also has Type 1 diabetes and an acquired brain injury.