This is so debilitating - it's migraine-like (i.e. visuals and strange sensation) and lasts all-day.
I've been ok-ish on the Levothyroxine (not super-well but getting by) but this is too much. I also have diarrhoea every day after taking it but I've always had that with the Levo.
I take the Levothyroxine at 6am with a big glass of water and half an hour later have a cup of tea with oat milk. I don't eat anything or take any other meds for a couple of hours after that.
When last tested my T4/T3 were a little low (halfway through range rather than 75% as previously) but TSH was hovering on normal/suppressed, so not elevated.
I think it's to do with the Levo or the way I'm taking it because it's the same most days. (It's Accord btw)
I just feel like not taking it tbh and I have done that a couple of times when feeling desperately ill and hey presto - no headache.
Written by
msmono
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Have you tried any other formulations of levothyroxine?
helvella's medicines documents (UK and Rest of the World) can be found here:
helvella - Thyroid Hormone Medicines
helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.
This link takes you to a page which has direct links to the documents from Dropbox and Google Drive, and QR codes to make it easy to access from phones.
The UK document contains up-to-date versions of the Summary Matrix for tablets, oral solutions and liothyronine available in the UK.
Maybe trial taking Levo at bedtime to see how you react. Your stomach has to be empty so should have eaten about 2 hours before. The following is a link that may be helpful:-
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