Can anyone help or advise please?

I had a total thyroidectomy in October after a 4th relapse of being overactive. Since having it removed I've been taking thyroxine. The doctors keep changing my dose as my levels keep changing. As a result I feel pretty awful and some days like I can't cope. The doc seems to only focus on my TSH levels but I've read this isn't the only important one. I don't really understand how it all works but just feel I can't keep on like this for too much longer. There seems to be no real plan in place regarding my treatment, just hit and miss. Thanks for any advice.

2 Replies

  • I am not medically qualified but I think the worst thing doctors can do is adjust meds up/down according to the TSH. The TSH changes throughout the day, so I don't understand their aim especially if the aim is for you to get well. It doesn't appear to be working for you so far.

    What to do is to get a copy of your most recent thyroid gland blood test with the ranges, and post on a new question for members to comment. Always get a copy for your own records. If you haven't had a recent one get one and have it as early as possible in the morning - don't take your medication beforehand - have it afterwards. If you haven't already had a vitamin B12, Vit D, iron, ferritin and folate ask for these to be done at the same time. Also state the dose of levo you are taking.

  • Hi i feel the same had a tt in august started on 100 micro levo then upped to 125 micro in november still had hypo symptoms and asked for another increase but was told no as my tsh was in range, so i self medicated another 25 micro of levo and am feeling ok, still a few lingering hypo symptoms, but i was not prepared to continue on the 125 micro and still feel unwell, i feel i was just left to get on with it and my endo really just not interested in how i was feeling, only that my tsh result is in range, its really awfull how we thyroid patients are treated.

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