Hi guys. Transphenoidal pituitary op done on 28/1. Phew I survived it! Had cerebral fluid leak during 6 hour op, thigh muscle used to plug leak. Had diabetes insipidous for few days following surgery. Still very bunged up nasally, no taste or smell, but just so grateful to be home. Had a nasty dip this weekend - felt nauseous, light headed, hot and clammy and generally yuck! Spent day at Kings yesterday and I've now been put on hydrocortisone as my cortisol levels dropped. Bit scary being on steroids, am being left to play about with my dosing myself. Took 10mg at 8 am yesterday, but by 12pm at hospital, had another "episode" and drs gave me another 10mg which had me feeling better within the hour. Have today taken 10mg at 8 am and am hoping I can last until 2 pm for my final dose of the day. Have insulin stress test booked for 11 March - not a pleasant experience, I'm told!
Just to let you know, I'm alive and kicking. Nobody warned me about my hormone levels and adrenals playing up, but things may calm down. Dr explained my pituitary gland has been knocked about and is being naughty! However, only time will tell if these problems are permanent. Anyone else on HC that can give advice? I'm on the tablets, not cream. The upside to op is that headaches have virtually gone, eyesight has a dramatic improvement and dizziness gone too. Thank you all for your wonderful support, Laura xx