I started thinking that maybe my DR. Got mixed up or had a brainfog himself....

[ThyroidHell]

Hi all , The more I think this ( correct if I am wrong as I am a novice with thyroid issues ) I had TT in June and was 1st on 100mcg per day. This was dropped to 75mcg per day in September after blood tests. Then I had TSH 0.43 and T4 17.5. I had blood test in January and TSH was 0.21 and T4 14.8 , he wanted to drop my doze to 50mcg per day. When my results are lower than previous shouldn't the medication go up? Administrator Rod mentioned this before and the thought he wouldn't be happy about it. I just thought if my GP was having a brain fog himself. I haven't dropped my medication to 50mcg anyways as I feel fine but thinking if it would be beneficial to have a bigger doze or how the hell this whole thing works :o( I need a nutshell with all the info in there lol.

Many thanks for reading this

Marja x

[Duchy82]

He is basing the proposed drop on your tsh, the lower tsh the 'better' your thyroid function is supposed to be.... But you have no thyroid so really tsh is worthless in my opinion. I think it is good that you didn't lower your dose obviously because there are no ranges on the results you put up i cant give you a definite answers as your t4 could be low or mid range but as long as you feel well on the dose you are on there is no reason to change/drop your dose

Consider when you have your bloodtest done. Book any future tests as early as possible in the morning and don't take your levothyroxine before the blood test. hope that helps a little bit.

[ThyroidHell in reply to Duchy82]

Hi MCoates , I also think TSH is worthless test and should have T3 instead which I am going to ask in April. As for blootests ..I am always there before 7 and fasting ..confused though as Dr said I should take the med and other people say NOT

Thanks :o)

[Duchy82 in reply to ThyroidHell]

Dont it can make a huge difference to the results i have had this and my tsh can be significantly lower if i have taken my meds (usually happens when my gynae gives me a surprise blood test) and if its not first thing in the morning

[mickstability in reply to ThyroidHell]

I don't agree that testing TSH is worthless, as it indicates what the pituitary gland is secreting to the (non existent) Thyroid, and that is why it is tested in TT patients who have had cancer as a fully suppressed TSH is one safeguard against regrowth. This does tend to lead to over - medication, however, but I doubt you'd be overcooked on the dose you're currently on. Could be you're not converting T4 well, but I'd explore ways of improving conversion before opting for T3, as If you can get euthyroid with T4 you can more or less forget about it, which ain't the case with T3.

[Piedo]

Hi thyroid hell

I have a similar situation to you after my TT last year I was on 125 and felt really well after blood tests my Dr. Dropped me down to 100 I saw an endo who said I must not be on 125 as it could blood clots in my heart( I have no problems with my heart)

After recent blood tests my TSH is 0.01and my T417.7 he wanted to dropped me to 75 I tried for a few weeks and felt awful so he has agreed for me to go back to 100 I feel better.

Surly if we don t have a thyroid we need more thyroxine not less.I worry about the long term affect of having a low dose ,high cholesterol being one.

Piedo

[ThyroidHell in reply to Piedo]

Hi Piedro , tell me about it! MY cholestrol is all time high 6.1 ! And I remember the days when it was 2.7 ! I have not changed my eating habits and I am not overweight at all either. I am so sick of this carry-on not true. What about your blootests? Do you take medication before it or not? I have conflicting advice on this too.

Marja

[Piedo in reply to ThyroidHell]

Hi Thyroid Hell (love the name)

I don t take my meds before blood test I have it done first thing in the morning and take my thyroxine after then don t eat for a while.

I am taking B12magnesium vit C and zinc and eat Brazil nuts for selenium,

Like you I am fed up with the consequences of not having a thyroid none of which was told to me before my op.I was told having my thyroid removed and taking a little pill would solve everything.i wish I knew then what I know now.

Still looking on the bright side I have managed to stay slim, my biggest fear was putting on weight.

Piedo