The reason your email has helped so much is because I had no idea before reading it what I’m experiencing is yet another manifestation of Levothyroxine side effects. Knowing this makes all the difference because I really thought, given the physical effects too, I couldn’t recover. I can see now years of ill-health which has been exacerbated by taking this drug has caused depression and that is exaggerated by the drug too. Not sure I can do much about the physical side effects but kicking suicidal tendencies into touch which are artificially manufactured, an illusion, created by Levothyroxine I can do.
I’ve come to the conclusion it’s pure luck if you have a GP who’ll take Levothyroxine complaints seriously and I think a lot comes from sheer ignorance, not necessarily their fault, because there’s no reliable research available on any of the long term effects. Essentially everyone taking the drug is a guinea pig. I had exactly the same problem with cancer drugs both of which, taken consecutively, were the only drug on the market to combat the disease. The view seemed to be as there was no alternative; it didn’t really matter if there were non-fatal side effects. As more than one nurse/doctor remarked to me when I pointed out a year’s treatment for the side effects had been useless, “You’re still alive aren’t you.”
Life, regardless of the quality of that life, is the only yardstick they measure by. The concept of the curative drug being worse than the disease is not a consideration and they think you’re mad to think differently; but I’ve never met a doctor or nurse who had to deal themselves with the same situation.
There’s some consolation in that I was told, initially, I would have to take the cancer drugs for the rest of my life; after about 3 years of doing so it was reduced to 10 years. A couple of years later it was 7 years and then one day I went for the annual check-up and was told I was ‘cured’ and could toss the leftovers in the dustbin forever. This occurred because by then research had proved life-long use was unnecessary.
Perhaps the same will happen with Levothyroxine eventually or researchers will come up with a drug that targets the Thyroid gland alone without attacking other parts of the body and mind. Meanwhile I don’t have much hope my local GP practice can help much. I’ve learned more from healthunlocked’ in 3 months than in the entire 7 years since I was diagnosed.
The doctor you saw who was supposed to organize your tests sounds really inefficient and shifting you to a nurse rather indicates he knew that himself. If you write to the doctor you trust he really cannot put your letter aside because it might contain valuable information and he’ll probably realize you were ‘brushed off’ by the doctor and nurse you did see. As for accurately diagnosing yourself through a website, as suggested by the nurse; if you are capable of doing that you wouldn’t have needed either a doctor or nurse. Fact she suggested it at all is rather revealing.
I do hope you are able to get the treatment you need soon from people who care. Best wishes - Dio