please write or email to these people the more support we get something might get done for us that are left to suffer.

[howlyn]

Afshan has also asked that we encourage everybody who has been left to suffer, to write to the General Medical Council, Customer Service Manager, General Medical Council, 350 Euston Road, London, NW1 3JN. Email: [e-mail] and Dame Sally Davies, Department of Health, Room 114, Richmond House, 79 Whitehall, London SW1A 2NS. Email: [e-mail] to ask them to look after your health, as both promise they are working in the patient’s best interest.

[howlyn]

Afshan is telling us what to do if you are DR Skinner patient that is what i am going to do if we do not try we will not get any where the more people email these people hopefully they will do something.

[whackythyroid in reply to howlyn]

Hi Howlyn, Thanks for letting us know. The more we do and stick together the more help we will hopefully get. I will email them too xx

[rosetrees]

I wasn't a patient of Dr S (I saw Dr P), but I am more than happy to write. We should all write, regardless of whether or not we saw Dr Skinner.

[Hidden]

I wouldn't know where to start, to do this. Would one need to go through one's whole thyroid history? Would one need to rehearse the entire debate (as we do on this forum)? Although I'm pretty sure no doctor is remotely interested in what we say on here, I'm not sure I'm comfortable sticking my head so far above the parapet as this. One assumes that if there is any follow up to such a letter it will begin with one's GP? She already considers I'm a mad old moaning Minnie (apologies to any Minnies on the forum!) :o(

[karinad]

I already sent an email to the gmc once I heard about dr skinner. It may not have been the right email to send but I wanted to let them know what I thought if them!

[vienna2010]

I am more than ready to do this. I am fuming from three years of GP and endo incompetence not to mention the NHS system that is entirely cost and career driven rather than patient driven. But I really believe that there should be a coordinated campaign. Does this exist, is Thyroid UK doing anything on this front? I am ready to assist!

[howlyn in reply to vienna2010]

i agree with you

[howlyn]

I think we all have to stick together and do something otherwise we will be left to go unwell. We try to help DR Skinner by writing to the GMC or emailing them well let us do something now help ourselves, and keep us well like DR Skinner done . We have to fight together 1 or 2 is not going to make any difference we need all of us to do it

[cloud1]

Yes,we all need to write.I wrote a longish letter(snail mail!)to the GMC in Oct about my 'thytoid story'(untreated hypo/hashis;suffered many years ill health).At the end i wrote that ,not only is this situation unacceptable ;and urged them to listen to my and many othrr peoples similar situation...and change it.I also said that this situation is 'inhumane',as it is now.

You know i recently bought a copy of the book 'Stop the Thyroid Madness' and the title and cover of the book made me think;the Americans are alot more direct and 'unappolegetic' aboutus thyroid patients situation...i just think in the UK we are far too' meek' about it...we need to be more like our USA thyroidie sisters n brothers.Say it loud n clear...'this situation sucks';its got to change,seriously.We deserve better.

[Neeta-K]

Written to both!

[karen]

Should we be attempting to get GP's to take over Dr Skinner's treatment (NDT in my case = not a hope in hell) before writing to the GMC/Chief Medical Officer -first - or express the concerns we're well aware of that given the status quo - we will be left without treatment without Dr Skinner ?

[ourida55]

I wasn't under Dr Skinner but will do anything necessary to help our plight, being hypo for 28yrs or more and still getting worse, even tho I managed to get T3 added a year ago from my endo.. but he has only put the dose up once by half a tablet and I know I need more, especially as he's brought my T4 right down from 150 mcg to 50 mcg.. They don't seem to care that we are suffering on a daily basis with low thyroid treatment. Im ready to assist in any way possible. I changed my GP which was suggested by my endo a few years ago..and she is a very nice doctor but hasn't a clue about how to help me get well.. just says she will have to get in touch with my endo with all the questions I have asked her and she won't consider NDT unless he agrees I should have it, which I know he doesn't want to do and not seeing him until the end of march. My marriage is breaking down and having to cancel an expensive holiday we were meant to be going on over the new year because I can't handle how ill I constantly feel. Will be on my own at a time that should be happy but my quality of life is non existant and even though Ive spoke to my gp twice in the past few weeks, she said she has to consult her colleagues for advice but Im banging my head against a brick wall. She wants to put me back on anti-depressants that I was on for many years and tried them all but nothing worked.. Its a total disgrace and we all need help but no-one is listening. NDT needs to be given by GPs as and when necessary, instead of being told it might damage us. We are already at risk of heart problems as well as brain damage because we are deficient in thyroid hormone without proper treatment.