Vitamin D3 too high a dose?: Was told my D levels... - Thyroid UK

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Vitamin D3 too high a dose?

celticlady profile image
8 Replies

Was told my D levels were really low. Doc put me on 10000iu of supplements to be taken 5 days running then 2 days break. Have really been feeling rubbish since I started 2 weeks ago! Headaches/lack of appetite/slight nausea/metallic taste in mouth/ to name a few -looked up online side effects and hey presto-all of the above were mentioned!

I felt a lot better before taking them-anyone else had a similar thing as the pharmacist said it's unusual.

haven't spoken to the doc yet but we all know the response-oh-that's unusual! The same doc who missed my text book symptoms of hypothyroidism! Our lives in their hands...........

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celticlady
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8 Replies
bantam12 profile image
bantam12

Side effects are common with Vit D. My vit d level was 12 which is severe deficiency, I was prescribed 800iu and I can't even manage that low dose.

You do need to have a calcium blood test, especially before starting on a high dose, if your calcium level is high end then taking Vit D can cause it to go over range which would also give you symptoms, calcium should never be above the range.

You could try a lower dose. I found just taking 800iu now and again works for me. I do have high calcium so can't take any more than that.

RedApple profile image
RedAppleAdministrator

Yes, the dose may be too high for you. Some people can tolerate huge doses, others cannot. I personally cannot take any vitamin D supplements (not even the minimum 400iu) without feeling dreadful within a couple of days. I posted a link to a booklet from the Vitamin D Coucil the other day. Might be worth reading in case it provides any clues for you.

Here's the link to my post healthunlocked.com/thyroidu...

RedApple profile image
RedAppleAdministrator

Well this Godfather Prof hasn't met me yet! I can assure both you and him that I have tried every variation of vit D supplement possible, with and without food, variations in when I take it (daily, weekly, alternate days etc etc.) My calcium is fine, I've had tests for parathyroid, lyme disease etc as these can affect vit D tolerance.

If you do a search on the web, you will find others in the same situation as me, all looking for answers. My next route for investigation is via my genetic testing, but I haven't explored my results yet to know if I have any clues there.

I don't have a problem being in the sun, but I absolutely cannot tolerate vit D supplements. If I could move to a sunnier climate, that would be ideal, but it's not even a remote possibility.

I am also unable to tolerate many other supplements that people seem to shovel down in high doses without problem. As an example, a small dose of 50mcg selenium makes me vomit (with or without food), and more than 400mg vitamin C gives me stomach cramps, despite split dosing even that amount.

If there's one thing to be learned from forums like this, it is that we are all different, and what is good for one is not necessarily good for another. There is still much to learn, and I find it hard to have much respect for medical people who cannot open their minds to this fact.

bantam12 profile image
bantam12

Like Redapple I also have tried all the different ways of taking Vit D and other vitamins and without exception all make me feel very unwell.

My endo told me there are many people who have a problem with Vit D which is clearly obvious by the number of posts on various forums.

I thank my lucky stars I haven't seen this dangerously blinkered Prof who puts everyone in the same box ,I would have died of hypercalcemia if I had followed his treatment.

celticlady profile image
celticlady

THANK YOU SO MUCH-i really thought it might be me!! Wow-the pharmacist had never heard of side effects!!!

I feel a bit better just reading these replies -thank God I didn't take the megablaster 50000 iu dose the doc recommended. Would have taken ages to come out of my system-just wondering how long the recent stuff will take to exit.

Once again-thanks one and all-this site really sorts out the probs that the medical profession(6 years training) don't seem to be able to.

bantam12 profile image
bantam12 in reply to celticlady

You should feel ok in a few days from stopping it. I do take a few doses now and again as my level is so low but once the side effects get to bad I stop and fairly quickly I feel ok again.

The pharmacist is not at fault as so many people just swallow vit pills like sweets with no ill effects BUT for some of us it's not so straight forward.

celticlady profile image
celticlady

I have to say that in my personal opinion it is the pharmacist's job to know about possible bad reactions.

Peacefullbliss profile image
Peacefullbliss

High dosages of Vitamin D should be taken with Vitamin K.

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