Hello everyone, I posted this on another thread and was advised to create my own post (I think I broke the rules!)
I joined the forum on Wednesday so very much a newbie so please bear with me! I am very interested in many of the posts as I can recognise many of the problems in myself. I think the posts with regards to Adrenals may be an explanation of a problem that I have and is detailed at the foot.
Brief synopsis of me and my health history
Type 1 Diabetes diagnosed age 12
UAT diagnosed age 27
Coeliac diagnosed age 43
Osteoperosis - diagnosed age 44
Low B12 diagnosed age 50 by GP blood test - helpful Endo tested for antibodies and it is not pernicious anaemia
UAT - age 27 no symptoms other than lump on my thyroid gland and as I had lost a bit of weight GP assumed overactive thyroid, tests came back normal.
Routine Diabetic clinic tests 6 months later showed underactive thyroid, still no symptoms other than lump.
Started on 50mcg of T4 which went up over the years to 225mcg. I am told by people who should know that no one should need that much and there must be something else wrong. For many years I had no symptoms of having UAT.
Problem - although TSH low and FT4 at upper end of normal over the last 10 years I am constantly cold, lethargic and despite almost starving myself either stay still weight wise or put on weight. I asked my GP to put me on T3 they said no. I asked to be referred to an Endo at another hospital as I knew he believed in listening to symptoms and that some patients require T3 & T4 and they said no.
Given my Coeliac I may not be absorbing my thyroxene completely or consistently BUT, could it be an inability to convert T4 to usable T3. I would appreciate your thoughts and any information I can use to convince my doctor that I should be on T3 & T4. Given I have 3 diagnosed autoimmune conditions could I have another auto immune condition affecting my Adrenal gland and ability to do the conversion?
Any help will be much appreciated