I was diagnosed with fibromyalgia about 14 yrs ago -although had symptoms long before & not long after hypothyroidism. Had increasing doses of levo to 100 mg. I asked to see an endo privately in January as never really felt well since & was totally fed up with all the symptoms - he tried me on 20mg Liothyronine (split dose am& pm) & reduced levo to 75mg . I couldn't tolerate so he reduced levo to 50mg but in June he stopped Liothyronine & now back on 100mg & 125mg levo alternate days. I've gained about 5st & whatever I do cannot lose any - this in turn is causing hip back problems & I need an op at some point. (Also had foot surgery & wear orthodics always).
Recently I am feeling really shaky & wobbly which is worrying me & very breathless with any exertion - I don't sleep well at all & have got used to all the aches & pains everywhere especially in the morning so don't know if it is hypo/hyper or fibromyalgia symptoms ?? I walk with a stick & sometime cannot even stand let alone walk - He even suggested taking orlistat pills to help reduce weight which I tried but not sure they are good with thyroid meds?! About 2 yrs ago I had an angiogram & have irregular beats (to do with the electrical impulses) - cardiologist prescribed beta blocker & was on BP pills but I have reduced these as I'm sure they make it worse!!
I've seen a rheumatologist for my fibro - he suggested Vit D as did the endo - so where do I go from here ?? although it sounds like it I am not a hypochondriac - I just want to get on with my life but have to continually sit & sleep most days for about 2/3 hrs otherwise I would not be able to function at all.
Sorry for the long moan - but as many others here just don't know which way to turn next?!!! Any thoughts or suggestions?
Thanks for listening Chris