After six months and having been re-assessed by an endo at the request of my CCG I have been told I will get my Liothryonine back . That was five weeks ago. Rang the hospital to see how much longer I would have to wait. They couldn't believe my GP hadn't already given it to me. He says he can't prescribe it until CCG says he can. CCG have now put in writing to a councillor that's supporting me that they do allow it if made an exceptional case but hospital say doctor prescribes it, doctor says hospital should prescribe it. Anyone else come up against this? Meanwhile in desperation I have obtained a private prescription just for 14 tablets which will last me a month. No pharmacies where I live have it. One says they could only order 28. Another said they could order the 14 but would have to add a fee of £200 as it's a private prescription. Anyone know why they have to charge that? I will ring round tomorrow some other towns and maybe if I find someone that already has it they won't charge that. Anyone done this?