Sorry if this turns out to be a long post! Like many others I 'm so grateful for this site and all the helpful information that is posted. I am hoping someone can help with this...
I have been hypo (almost certainly hashi's as it's in the family) for about 12 years, on T4 175mcg until 4 years ago, when endo put me on T3 (20mcg) as well as 75mcg T4 because of brain fog, lack of energy and depression. All those symptoms went and I felt fine for a couple of years. Trouble started last year when had ovary removed. Came out of hospital with tinnitus, and as last year went on, found that I was more breathless with lots of aching joints and muscles.
Went to see Dr P, who told me I had adrenal problems and possibly T4 conversion problem. He suggested nutri adrenal and to reduce T4 and increase T3. I did this over the Christmas hols, and found that one night I was having palpitations, and irregular heartbeat and heart fluttering. This frightened me. I was on heart monitor for a week, and told I had Atrial Fibrillation and ectopic heart beats. Suggested I take beta blockers. However, this is sometimes given for hyperthyroid and I didn't want to counteract the thyroid medication I was on, so I declined. In spite of returning to previous doses of T4 and T3, the heart problems remain.
symptoms got worse. By April this year I was having pain in both feet, which has been attributed to plantar fasciitis. I know this can be related to thyroid disease. I am also getting tremors in my hands and feet at times, and a pain like an electric charge all the way down my spine to my feet and out to my hands mostly at night.
I asked to see NHS endo originally prescribed T3. He is very accessible and willing to listen. However, he is main stream and his understanding is limited. His feeling is that if my symptoms are attributable to thyroid, then I am over medicated, but he is not sure they are thyroid related. My heart rate is normal and my temperature lower than normal. I can't lose weight and suffer from a variety of hypo symptoms as listed on your website. So I seem to be displaying symptoms of hypo and perhaps hyper as well.
My latest test results were: TSH 0.02, FT4 15.2 (11-25) and FT3 5.7 (3.?-6.8). Endo thinks TSH is what suggests hyper. He has not done rT3, which may be enlightening. But he does say that if I can find a health professional who can help with dosage of Armour he would be willing to support me.
last year my B12 and D3 levels were just fine, so I don't think it is that. So, if I am to follow my endo's advice, I should look for someone who can prescribe and monitor progress on NDT and probably to check rT3 as well. I have read on the Thyroid UK site about a Dr C. Can anyone pm me to say whether he could help?
Any suggestions welcome. Symptoms confusing and rather scary. Thank you. LB