I was hoping someone could give some advice on pooling? I've temporarily stopped my Nature-Throid meds while I try and sort this out, but could really use some advice. I don't know the best way to deal with this or how long it might be a problem.
I had a severe ME diagnosis, but was diagnosed by both Dr M and Dr P as having a thyroid prob. I am under treatment from Dr P. I had reached the dizzy heights of 45mgs of Nature Throid, having previously got to 3 Nutri-Thyroid before deciding to switch.
My GP knows about this, and is very supportive, telling me to see the NDT as supplements (I think she feels her hands are tied) as they were helping me, and we're aiming to get me on my feet enough to manage getting to see an Endo as soon as poss. I had been on my feet far more and able to do some short walking and yoga, which is a great improvement from being bedbound & hardly able to sit up.
Last week I started having bad panic attacks so my GP agreed to retest my thyroid and my iron. She didn't think my NDT dose was high enough for it to be that, per se, causing the panic attacks. However, it turns out my ferritin had sunk to 15 from 70 in January, so that clearly is a big problem... (Heavy periods). I'm presuming that this is a factor in why I started having panic attacks etc, from the thyroid stopping working in the cells and pooling???
I also did a Genova private test to see my T3 and rT3. Previously my T3 had been low in range. It had gone up to high in range, as had my rT3. Does that confirm the pooling? It also said I had TPO antibodies out of range at 42 (<35) and wrote in the commentary box "Probable auto-immune thyroid disease".
Can anyone tell me the best way of dealing with this - should I stop taking the Throid for a while while I build up the iron? (Even if it means going back to being bedbound?) How long can pooling take to reduce (if that's what it is?). I know it's going to take at least a month of 2x iron tabs and iron rich diet to get my ferritin up 30 points (have done this before).
Any advice would be really appreciated.