Had put all my hopes into the visit to the private Endo. Hopes dashed. TSH, T3 & T4 all normal and full blood count from GP all normal. 15 minutes into the consultion I was given the opinion that the problem lies elsewhere not endo. (be aware tests are nowhere near complete re. antibodies, cortisol, diabetis,etc but good enough to give the above opinion).
So I dismissed the Endo to the bench (mark) took my goitre, my enlarged unresponsive pupil, and almost every symptom ticked on TUK tick list of symptoms and went to find a new team. Meanwhile newer symptoms rush on, slurred speech, difficulty finding the right words, my tongue feels thick and a strong metallic taste in my mouth, the feelings like crawling down the side of my face into the top of my chest which can be warm or cold (not exactly pins and needles, just soft tickling sensation). The worst (best) part is that these symptoms pass so its hard to demonstrate. Visited GP who gave some comfort saying they know something wrong but still waiting to hear from outstanding tests from consultants before muddying the waters (1 autoimmune condition border line and adrenals needed a test from hospital appointment). My pulse is always below 60 and my BR temp has been lower than 36.5 (my shocking memory stops me doing it more often). I am repeatedly told its not my thyroid based on my bloods (both parents hypothyroid). Notwithstanding the outstanding tests, what should I do next? I am reluctant to supplement or self medicate (can you do that anyway??!!!) while investigations are ongoing but every day is torture and I cant understand why none of the professionals will seriously consider my symptoms or my thoughts that my problems stem from my hormones and vitamins. Any thoughts on what to do next to try to help myself get well. X