I have had my thyroid radioactively killed, so have no active thyroid. Am fighting a long battle to have more medication as I feel almost as bad as before the treatment - I keep being told my levels are 'normal' and that I am just fat - if I lost weight I would be in perfect health! (Apparently!) I can't share my results as so far they won't let me know what they are - "it is far too confusing for someone not medically qualified to understand......." So having fought almost 8 years before they agreed my thyroid was 'broken' (I was treated as just fat and menopausal - ) I feel only slightly better than before!
Originally I was on 100 Levothyroxine, but because I read about it and felt I was 'not right' - overweight, brain fog, lethargy, generally crappy all over, I requested some more help and could I try Liothyronnine. "Oh - you know about that do you?" - Anyhow, I was made to drop the Levo to 50 and take 10 of Liothyronine as well - after three months this went up to 75 of Levo but still 10 of Liothyronine - which after about two months I managed to persuade them to change up to 20 Lio.
So - now I am on 75 Thyroxine, 20 Liothyronine - but still feel really awful. I fall asleep in the afternoons whatever or wherever I am, I have been doing my temperature on waking and before movement every morning - my average is 35.1 (been down as low as 34.6) so I really do still feel under dosed!
I was wondering if anyone had tried taking the T3(Liothyronine) ADDITIONALLY in the afternoons and was hoping to ask if they would prescribe me another 5 or 10 to take each day then - as I am sure I read that the T3 'runs out' after a few hours of ingestion?
Anyway - if any of you have had enough energy to read this (thank you so much if you are!) could you give your thoughts? I did get VitD/B12/iron and all the other stuff tested, but as usual am just told - They Are Normal.
The brain fog is driving me nuts to be honest! (& the afternoon nodding off!) I am 57 and run my own business so need to keep going somehow!x