Test results = vindicated (kind of)! And apolog... - Thyroid UK

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Test results = vindicated (kind of)! And apologies to posters here.

ecie profile image
ecie
7 Replies

After a long absence, I'm checking back in here. First of all however I must apologise to those who messaged me and responded to my questions, to whom I never replied. At the time I had just become so depressed about my condition(s) and that no-one in the medical field was taking me seriously, that I just had to remove myself entirely from anything to do with hypothyroid and its associated conditions. So again, sorry about that, people!

I'm back now with my latest test results which prove that T4 meds alone are not sufficient. My T4 is now 12 - the lowest end of acceptable, and the lowest it's ever been - and my TSH 0.77. The GP refused to test for hypopituitary, but finally agreed to give me a month's trial of T3 meds. So, it JUST had to get to the stage where I've gained 35lbs in half a year, am fogged up, zombified, exhausted, am losing what's left of my hair and outer eyebrows, extremely poor circulation, frequent break outs of acne, and permanently dizzy and anxious, and be borderline T4 deficient, for them to take any action. Jeez Louise...

So, finally, I walked away from the GP's surgery with a rx of Liothyronine! HOWEVER, I get to the pharmacist and they tell me basically what I've been reading here; that there's a distribution problem with T3 meds right now and they have no idea when they'll get any. Fortunately, last December I had purchased Cynomel from a website recommended by several members here (but had declined to take it because..well.. I got scared basically), so I'm going to take that for the time being. I'll let you know how I get on.

Hope everyone's having a good day :)

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ecie
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7 Replies

Good luck with the Cynomel. Dr. Lowe believed that Cynomel was the purest form of T3 available. Hope it works for you. Jane x

ecie profile image
ecie in reply to

Thanks Jane! I'll keep you updated (well, I'll try to).

shaws profile image
shawsAdministrator

Wishing you well. I am sure you will benefit.

ecie profile image
ecie in reply toshaws

Thanks shaws!

Hiphypo profile image
Hiphypo

Good for you for keeping going, and hope the T3 starts to make you feel better very soon

Jenni x

ecie profile image
ecie in reply toHiphypo

Thank you Jenni :)

juliaheppers profile image
juliaheppers

Oh my darlin you sound like me xxxx

I am very depressed at the moment I feel my life is being taken over and no one is listening and now I think my husband is jealous of the time I spend on here???!!!!!!!????!!!

I too have just got the go ahead for t3. I had to get mine from my local hospital as I phoned round every chemist who had none - you will need a hospital prescription for this service tho in my area anyway

Also I am aware that supply is going to get easier

My son keeps me going but when he's at school if I'm feeling low I get very lonely and angry for not being looked after properly - support on here is amazing

Well done for keep on keeping on it is soooooooo hard

Good luck and you must keep in touch on here it's the only place where you get listened to

Kindest regards

Julia xxxx

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