I haven’t posted a blog before but have read, with interest, so many of those posted on this site knowing exactly what you have suffered or are suffering.
I was diagnosed with myxoedema in 1975, having been ill for a few years before that. Thyroxine made my symptoms worse. You know the story. “Blood levels are normal, so any symptoms you are having are all in your head”. Anyway, I won’t go into the sad sorry tale. I’m now prescribed T3 and although not perfect I feel so much better. Life is good but I’m very angry. There was a T3 shortage a few years ago and it took months to get back to a normal supply. Today, I have one month supply but no pharmacy in my area has any on their shelves and neither do their wholesalers. This seems to be the situation right across the UK. It’s not good enough.
I live in Fife, in Scotland. Here, ‘Health’ is a devolved issue governed by Holyrood.
According to information I received from the Scottish Government, any GP can write a prescription for any unlicensed drug he/she feels is necessary for a patient’s health.
This prescription would be given to a pharmacist who would then have to ask their local NHS Trust whether they would be prepared to fund it. For those of us totally reliant on the NHS, as I am, our battle appears to be on two fronts. The first, to persuade a GP to write such a script. The second, to obtain funding.
I am particularly interested in being contacted by anyone taking T3 who lives within the area covered by NHS Fife. It would be so much better if we could act as a unit, rather than as individuals, when possibly doing battle with a Trust or Government. Those living in other areas might like to do something similar.
I would be particularly interested if anyone could come up with any other ideas as to how we might publicise our predicament.