Another day, another hospital appointment!

I have just come back from the freeman hospital in Newcastle from a new referral. I have been through many specialists from gastroenterology to gynaecology. My case has been going on for 11 years as I said in my previous blog. I will just go over my symptoms, I mave chronic pain in my abdomen, nausea and vomiting for the two weeks on the lead up to my period. So I am mainly bed ridden for 2 out of 4 weeks. I have never had bloating, constipation or diorhea or most of the regular symptoms.

So this time the doctor went through my file, listing what I have had and been through, to be honest I have had so many tests I couldn't remember half of it! But here's a few bits I have had

- lactose intolerance test - negative

- gel stomach scans - nothing found

- millions of blood tests - elevated white blood cell count so they did another one today!

I am going to have a colonoscopy (which I have never had!) blood and stool samples, he thinks nothing will show but its just so everything is covered. I have been tested with so many drugs, peppermint, anti spasmodics and many types of pain control. Nothing has worked except tramadol.

I asked about diets but he pretty much shrugged this off as i had been tested for lactose intolorance ( pretty sure there more that could trigger my stomach) I was told that basically there is no more that can be done as everything has been exhausted ( I agree actually) so I have been referred to the chronic pain management team to work out a way of managing the pain, so we will see what happens next........

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  • I have now fully read the book "Irritable Bowel Solutions" written by a Professor John Hunter and others to on this site would recommend it. I know it may appear to be clutching at straws, as it were, but may i suggest that you read it as it may just help you. You indeed have my sympathy when it comes to constantly going to hospital as i also have been there and i know that it can be a drain but in the end you will get better, just be positive. I send you my sincere and very best wishes.

  • Thank you so much for you kind words, I know it has to be my diet so I will look into that book and take matters in my own hands x

  • I know chronic pain is a PAIN! I'm making the rounds too.. Praying for an answer soon. Meanwhile we can share our travails here and maybe learn something!

  • Have you been checked for endometriosis???? I am a long term sufferer of IBS but in my mid 20s after a horrendous time of just like you vomiting, ibs symptoms and horrendous week or so bef period, I had a laparoscopy and they found endometriosis stuck all over my bowel. after treatment my symptoms improved.Also went on the pill for a while as inhibits regrowth.

    I still suffer terribly with ibs especially in the last couple of years it seems to affect me in cycles. I have a coil to prevent any bleeds and i take buscopan to relieve bowel cramps.I also follow a more restricted diet no wheat/gluten or lactose which is now 5 weeks in starting to help my symptoms.

    The colonoscopy is a good idea as will rule out that anything else is going on and hopefully this will ease any anxiety that you feel and have a positive impact on your geberal well being. I had one last Oct it really wasnt that bad, the 2 days prep living on the loo more than usual is the worst bit tbh, the procedure was fine, they give you a sedative to relax you.

    I hope all goes well and that you find somthing that helps you soon.

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