Pudendal Neuropathy

[IBS-]

Hi everyone,

I have recently been diagnosed with pudendal Neuropathy after suffering CHRONIC constipation for 7 years. This was caused during childbirth (C/-Section). As a result, I now suffer with inflammation and GERD.

It would be great to chat with anyone who suffers with this problem as it is debilitating and I am desperate to find a solution. My Gastro has prescribed me Prucalopride and Linzess but both stopped working after a few months..

I would be so grateful to anyone who would be happy to share their story, thoughts or advice as I am desperate to find a solution.

Thank you all.

[Angie11]

Did you take linzess and Prucalopride together or on separate days ?

[IBS- in reply to Angie11]

Hi Angie, I take Linzess every morning, and my Gastro said to incorporate Prucalopride if and when I need it…

When my Gastro first prescribed me Linzess it worked really well and I didn’t need the Linzess. However, I am finding myself reach for the Prucalopride more often, because rhe Linzess is no longer working…

Hope that helps? Any feedback welcome.

Thanks

[Angie11 in reply to IBS-]

I don’t have Pudental neuropathy but suffer from chronic constipation. My gastroenterologist has said that’s my bowel no longer can function without the help of laxatives and that no diet or exercise is going to change that. Linzess after a while does seem to lose its effectiveness, although I do still take it every day. The purcalopride gives me terrible pain. I take 2/4 laxido depending on how bad things are. I ended up twice in A&E with a block bowel so be careful.

Thanks for your reply.

[Plumt]

Hi

I was diagnosed with the same as they were convinced I had a trapped pudendal nerve

Had a nerve block which did not work and convinced them it was not caused by a trapped nerve and pointed me in the direction of a physio who specialised in pelvic floor dysfunction.

After lots of hard work, exercise and stretches my symptoms improved

Look it up on Google, it helped me but takes time

All the best

[Nomorelinzezs]

I understand. I take Linzess in the late morning and I eat an hour after to begin the bowel movements. What time of day do you take Linzess?