I want to talk about fecal Impaction…. I had it this time last week and I really thought my end had come. I don’t have IBS C it’s usually the other way but I’ve been doing a heath study thing which involved having muffins and bagels as blood sugar experiments ( with a monitor) and I think it just backed up. Anyway I was really scared, in agonies, couldn’t move, poo and fluid leaking out everywhere, and the only help the GP (Uk) could give me was a prescription for laxatives which I had to somehow get myself. Thankfully my neighbour came home and went to the chemist to pick it up for me - 10 miles drive to get there and they gave her the wrong stuff. In desperation I rang the surgery and asked them to just give the stuff to my neighbour but no- they refused. She had to go to Boots. Boots wouldn’t answer the phone. Then surgery said Boots hadn’t even collected prescription, then they rang back and said they had. I swore at them. All the time lying on bathroom floor covered in poo. Finally she got the right stuff and I took the megadose prescribed - was told it would work in 2 hrs. 4 hrs later and still in agony. I rang 111 - eventually a GP from my surgery rang at 10 to 6. He said there was no one who could help, the surgery was about to close, if I wanted a suppository I had to go to boots to buy it myself. I said please don’t leave me like this, I feel I’m going to die- he said in that case phone an ambulance. ( and we’ve all seen how that ends). Shortly after this I managed to go to the loo and pass the impacted poo- not without damage to my bum, and think I’ll have piles forever. I never ever want to go through that again. The next day the nurse phoned to ask how I was - told me off for doing a stupid gut health study, told me to continue with laxatives till things returned to ‘normal’ haha! . I imagine people with IBSC live in fear of this for the majority of the time. I am living in fear of it now. Any advice on future prevention gratefully received since no help is forthcoming from the great British NHS, depleted as it is at the moment by 12 years of right wing politics, plus a pandemic. . God help you if you have a heart attack or stroke. I feel really angry and helpless at the way I was treated, and the whole way gut issues are passed off as not important yet have such a devastating impact on peoples well being, mental health, and quality of life.
fecal Impaction- the worst thing ever… - IBS Network
fecal Impaction- the worst thing ever…
Poor you. I had a similar experience 12 months ago. Severe abdominal cramping pains. Only passing watery poo. Didn’t know what was causing it. It took over a week for docs to take me seriously. After nearly crying down the phone I was asked to go to see doc. He thought maybe an abscess in my bowel. Sent to to hospital. Turns out after X-ray & scan that I was badly impacted. 3 night stay ensued & massive doses of laxative given. I certainly won’t let myself get into that situation again, but I didn’t know what it was at the time! 😫.
Hope you are feeling better now.
Best wishes Ally
Gosh you really suffered, mine was only one day but it was very dramatic! I WAS crying down the phone and begging for help - but they said we’ve given you some medication so we’ve done what we can. I felt scared and abandoned! What do you use to prevent any recurrence?
Just Movicol - 2 satchets a day at the moment.
Inksplat, look through this information for possible answers. Consult with a health care professional before using any supplemen.
eonutrition.co.uk/post/when...
eonutrition.co.uk/post/thia...
stuttersense.blogspot.com/2...
examine.com/supplements/mag...
Thanks but being able to consult with a healthcare professional seems to be increasingly rare in the UK. I’ll look at the links, though they seem to be about SIBO and thiamine deficiency…
It's about thiamine's role in gut function including constipation and thiamine's activation by magnesium. It also points to thiamine's deficiency in general as this link expands on.
How horrible for you! That was really scary, and in the midst of it you are given no sympathy, and instead, the run-around by doctors etc. How are you feeling now? I hope slightly better?
I remember many years ago having a dream that I had been injured and was lying on the road with an arterial bleed. I remembered to put pressure on it, and pressed like heck. Then I rang 999. Someone answered and I asked for urgent help. But this jobsworth wanted my full name, post code, date of birth, mother's maiden name, National Insurance no. I am not kidding. I told them I am dying inch by inch and have probably an hour left to live and could they please speed it up and send an ambulance? But no...they still had more questions.
When I woke up, I thought 'well that wouldn't happen in real life!" But now, I am not so sure.
I feel if I have a heart attack I am just going to lie down and go to the spirit world.
Very sad to hear all these awful stories it appears that our NHS is breaking. So sorry to hear of all your pain. Pray 🙏 it never happens again
Hi inksplat , sorry you had to go through this , have had this a few times over the years from ibs c and I do live in fear of this all the time , so I do take laxatives daily now. I really do hope you feel better soon , fingers crossed it never happens again ! X
How terrible 💐
I had an impaction -- go to ER immediately, and they will remove the impaction.
I have slow transit and been told i will need laxatives daily for the rest of my life to prevent impaction etc....miserable!
Also have to use laxatives daily 🙁. I need to take 5mg bisacodyl 4 / 5 times a day to keep the flow in my intestines. Didn't the physicians find out what's the root cause of the slow transit in your small bowel / colon? I'm still trying to find the root cause of my functional bowel problems, even if there might not be a cure (yet). Now investigating the possibility of atypical mucoviscidosis as underlying disease/root cause of my chronic health problems.
Hi, unfortunately I asked that question to my gastro and they said they don't know what causes it and won't look into any underlying issues, really annoyed me, I'm going private now to try and get more answer's, I just have to wait till April before I can use my health cover for existing conditions. I do have bad methane overgrowth though but it's a chicken and egg situation as to which came first.
could it be that you have a mild form of cystic fybrosis CF / atypical CF (mucoviscidosis)? It's known that a CF gut can lead to dysbiosis -> gas in the small bowel -> slow transit -> functional bowel problems
Best Practices in the Management of the Gastrointestinal Aspects of Cystic Fibrosis: sciencedirect.com/journal/j...
I don't suffer with any chest issues at all, so I don't think that would be a factor. I wondered more about lupus or ehlers danlos as I can relate to a few of the symptoms
Or mast cell
Me neither, no lung problems but still my DNA is tested for mucoviscidosis (CF). That is the classical type, where everyone is thinking of when you talk about cystic fibrosis. But it also can affect an other organ, without necessarily the lungs. For example your gastrointestinal tract, bile duct, pancreatic duct. Then you have atypical CF
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