Chronic diarrhoea : Been suffering since April... - IBS Network

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Chronic diarrhoea

Emsky
Emsky
31 Replies

Been suffering since April, I honestly can't deal with it anymore, so depressed, I hate my life being like this, so far nothing has worked, had a colonoscopy and biopsys done which have came back clear so now I have no idea what to do, is there anything else that can be causing this? That maybe hasn't been checked out 😭

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FRreedman

Initially, I would cut out alcohol and fizzy drinks (produce too much gas), stop eating peanuts and sweetcorn (indigestible), stop eating Brussel sprouts and baked beans (produce to much gas). I would also ask my GP to refer me to a dietician and possibly look at the fodmap diet, and see how I go on from there. Let us know what happens or if you have any more questions or problems. Good luck.

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Emsky
Emsky
in reply to FRreedman

Don't drink alcohol, juice or caffeine, I was told to have beans 2 to 3 times a week by my bowel physio, been given excerises and a diet to follow which I have been, I really don't think it's ibs anymore I've had ibs for 6 years where I hardly went to the toilet I know you get ibsd but it literally happened overnight I don't understand how it could change so quickly and drastically in 1 day :(

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IBSNetwork
IBSNetworkAdministrator

Hi,

Sorry to hear you're struggling. We are here to help and support people living with IBS.

More information on how we can help is available here theibsnetwork.org

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Emsky
Emsky
in reply to IBSNetwork

I know you do, but I don't think it's ibs anymore if I'm honest and I don't know what sort of help you offer but unless you help me find a cure then anything else won't affect my feelings

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IBSNetwork
IBSNetworkAdministrator
in reply to Emsky

If you don't think it's IBS please go back to your GP.

Unfortunately, there is no cure for IBS. It's about self-management. We support people with IBS to better manage their condition.

More information on how we can help is available here theibsnetwork.org/member-be...

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Claire44

Good morning

I'm sorry you are feeling so rubbish. I had the same issues. I take a really good probiotic acidophilus, and use Entersol gel twice a day, it literally has helped me so much. I also follow the fodmap diet, but still have the odd bad day. I can't recommend Entersol gel highly enough. I hope you feel better soon xx

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Emsky
Emsky
in reply to Claire44

What does the gel taste like? I'm very sensitive to taste. Yeah just feeling like crap cos I was hoping I was getting answers from my biopsys

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Claire44
Claire44
in reply to Emsky

Hi it's totally tasteless and you mix it into water. It does leave a powdery residue but that's it. It's buy one get one free on the Entersol website. I couldn't do without it now. Hope you feel better soon xx

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asbayford

I hear you, I was at that point too. Low fodmap diet got rid of my D and can live normal again. Are you in the UK? If you are then urgently request a fodmap dietition from GP and also request a referral to a gastro to check for bile salt malabsorption. I promise you there is a silver lining :) download monash university food app and learn as much about the fodmap diet as you can. Also kings college has one, I downloaded both and they're amazing.

Beans are very high in Fructans and GOS, these are just 2 of the few fodmaps. Fybogel will help bulk up stool, I truly do believe 80% of ibs is food intolerances. Please let me know if this helps?

Sending you loads of hugs and you will beat this :) x

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pblife
pblife
in reply to asbayford

I agree, if you haven't tried the low fodmap diet then it's worth a try. I have ibs-d and it's helped my symptoms over 90% improvement. Now on the reintroduction phase to identify what causes D.

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asbayford
asbayford
in reply to pblife

Best of luck on your reintroduction, I start mine in next week. Nervous!

1 like
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pblife
pblife
in reply to asbayford

Good luck to you too :-) so far so good, apart from a slight upset tonight on the washout days! I'm really nervous too as it's been so nice to have such a break from symptoms. Let me know how yours goes please, if you're able...

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asbayford
asbayford
in reply to pblife

Thankyou! :) which fodmap group/s have you tested so far?

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pblife
pblife
in reply to asbayford

I have tested Fructan Grains using wheat. That went well. Todsy I was supposed to be testing garlic but for some reason I had cramps and gas. The only change to diet was tomato. It's allowed on diet but I've always wondered if tomato is a trigger as often have issues after a tomato heavy meal. I only had 4 slices but as I've not had any for over 4 weeks, maybe it's that. I'll now wait 3 days symptom free to test garlic. What are you testing first?

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asbayford
asbayford
in reply to pblife

Tomato could definitely be a trigger! Peppers are allowed too but they give me cramps 🤭 so strange. Going for mannitol then sorbitol first as they are less likely to be triggers for me, it's the fructans I'm scared of haha really hope this all goes well for you and any flare ups are manageable! Get that hot water bottle ready lol

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Emsky
Emsky
in reply to asbayford

For me it's more the going to the loo which I hate right now :( my doc has basically said I'm stuck like this indefinitely :(

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asbayford
asbayford
in reply to Emsky

That was the same for me I thought the never ending diarrhoea was something other than ibs, for years! But turned out it really was food intolerance to fodmaps, I kept saying no to Dr no it's not ibs and pushed for tests, I didnt realise following the fodmap diet stopped it all. It needs to be done right with a dietitian otherwise it may not work x

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pblife
pblife
in reply to asbayford

Hot water bottles at the ready... Good luck and keep me posted. I'm adding tomato to the list. Funilly enough I also definitely have to avoid peppers.

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Emsky
Emsky
in reply to asbayford

I've been advised of food and drinks to avoid which I've been following for about 7 weeks now, she suggested realistic diet changes for me as I have a very restricted diet already

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Emsky
Emsky
in reply to asbayford

Also been tested for intolerances and I'm fine with everything, I can literally eat something and be fine then eat the same thing 2 weeks later and have bad cramps I don't see to have any specific triggers, like fresh air seems to be one right now

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pblife
pblife
in reply to Emsky

I got to that point too. It's so odd how one day something is fine and the next time it's not. I hope you find some relief soon. I had cramps and gas tonight and the only thing I had different was tomato!

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Stuart24

I also recommend beans also, but only later once you have got your guts under some kind of control. Please read my following general advice copied here.

Most people find they are all clear, and that IBS is a condition brought on by our modern diet, freely accessible food, sedentary lifestyles and is usually initially set off by a GI infection or other trauma to the GI tract, and is then maintained by several factors. Particularly for IBS-D (diarrhoea predominant), the gut becomes hypersensitive to certain triggers, and the official description is that a physical brain-gut dysfunction develops which causes the gut to over-react to mild stimuli. This does not give enough time for small intestine digestion, resulting in under-digested, nutritionally rich rood entering your colon. This excessively rich food messes up the types and quantities of good and bad bacteria, which leads to inflammation, and worsening gut performance that can spiral out of control. Be aware that in this state you can still get new GI infections which make you even worse, or have other underlying clinical issues that are not connected to IBS, so you need to be vigilant for this and if concerned then visit your doctor again.

The good news is that this situation is reversible, and you need to be positive that with the correct understanding and behaviours you can get your life back in control.

After 27 years of suffering with IBS I have found that the long-term solution that actually works for addressing IBS is about FOUR key topics: your vitamins, daily fasting periods, peristalsis control and toxic food additives. Contrary to many, I find that stress control is not that significant. Stress can cause you to eat badly and not look after yourself, which disputably has a stronger effect than stress itself on gut activity.

You are effectively the manager of a “food nutrient extraction factory”, I know that sounds obvious, but I have found that IBS is not about medicines, but about changing the way you run the factory, and learning how to get the best performance out of it. Imagine a factory in chaos, where the raw materials keep getting added half-way through a running reactor process, where someone is randomly messing with the speed dials of the processes, where the place is never cleaned, where you don’t have the right tools (vitamins and enzymes) to do the job properly, and the occasional spanner (or illness) gets thrown in too. It’s not going to work well.

So after your doctor’s tests, if IBS is the diagnosis, then the first thing is to get familiar with the FODMAP diet. In the first case, you need to be cutting out wheat and milk products at least, and replacing them with oats, gluten-free options and lactose free milk options, and understanding which fruit and vegetables you can eat. You can gradually work off this diet as your symptoms improve, as you understand more about how your gut operates you will be able to tune or mix between low-FODMAPs and high FODMAPS depending on how well you are doing. The best overview of FODMAPs is in the following graphic. However, as you’ll read later. if you deep fry the green vegetables, or add undesirable spices they will still make you bad.

Eating low FODMAPs alone won’t fix you in the long term, but they are the place to start. There is much more to consider, so keep reading!

The next thing to sort out is your vitamins. An incident of food poisoning or GI infection can start you on a cycle that you need to make a really concerted effort to break out of. IBS causes vitamin deficiencies which are practically impossible to overcome in most people’s diets, especially if you’ve already adopted the FODMAP diet. But fundamentally, your vitamin levels affect the health of your intestines, and the health of your intestines affects your vitamin absorption and your production and effectiveness of your pancreatic digestive enzymes; it is a vicious circle that you have to break out of.

So, get some really good, multi-vitamins and take them without fail every day with your breakfast. Don’t use ones with high levels of Vitamin E on a daily basis, as in my case I found I was getting weakened skin on my hands resulting in ruptured finger blood vessels practically every day - so I keep this now well below 100% RDA (or NRV) and I’ve not had one for weeks so far. Get a blood test for Vitamin D and get you doctor to judge your supplement level required in IU’s to get you well healthy for Vitamin D. Do not get vitamins with high calcium and magnesium content initially as certainly in large doses these minerals can mess you up as they consume your stomach acid, and doses of magnesium will give you diarrhoea. You should get enough of these minerals from your diet. If you are on the low FODMAP diet, go for all lactose free dairy products can maintain your calcium, as unfortunately the diet tends to cut out almost all good sources of calcium.

Secondly, you should understand that your “food nutrition extraction factory” works on a batch-wise basis, and definitely not on a continuous process. So, you need to sort out your fasting periods immediately to give a clear break between batches, and the complete processing of each batch. This is normally overlooked by GP’s, but is an absolutely essential element for resolving IBS. Your small intestine should be practically sterile, and your stomach acid along with bowel cleaning contractions during fasting (called MMC) will usually do the cleaning. But, you need to fast for this to be effective, and by that I mean, ABSOLUTELY NO eating in between meals, ideally drinking only water. Imagine if you never washed your dinner plates and just kept putting food on them all the time!, they would be filthy and full of bacteria and this is what happens in your small intestine. This results in SIBO (Small Intestine Bacterial Overgrowth), which is apparently responsible for 85% of IBS cases, but is really only one of factors that you need to address. You need to give your small intestine plenty of time free of food for cleaning and maintaining the factory. The modern scenario of have cupboards full of rich foods permanently available day and night is a modern luxury outside of human evolution, and this is bad for you. Your stomach will sort itself out when you have got control of your small intestine (although if you've got gastritis you'll need to finish a course of omeprazole first), and then your large intestine will improve later as nutrients are more efficiently absorbed from your small intestine. Furthermore, you should be able to avoid future bouts of gastritis as during the fasting periods, your stomach becomes more neutral at nearly pH 4.

As a basic program, eat a good breakfast at say 7am (porridge with 50% almond milk or lactose free milk) or what suits you and then a good lunch at 12 o'clock – and absolutely no food in between. After lunch, no food at all for at least 5 hours, and eat well again for your evening meal because it has got to get you through the night. Ideally, no food after 7 pm, no supper or snacks, no food or milk at all until breakfast the next day. You will feel hunger in the fasting periods, but you will not starve, and this is doing you good!, You must NOT respond to the hunger - only with water or fruit tea. This is CRITICAL. Unless you are in a very healthy GI state, a mid-morning or afternoon snack interrupts your set meal digestion, causing acidity, SIBO, and driving premature advancement of food into your colon resulting in putrid fart gases mentioned later. Importantly, when you are feeling better, do not resort to your old ways, you are still recovering as you intestinal villi repair and become more efficient, and you need to make a life-style change to have this level of discipline in your eating and continue with it. It takes a few weeks at least, and you need to persevere with this. Failing on this will undermine all of your other good works. In a couple of weeks, you should be able to be getting off the low FODMAP diet, and begin working back the higher FODMAPs slowly into your diet. Some people recommend longer fasting periods, but for me the regular program above is sufficient without going extreme.

If your farts really stink like something died in your guts, then this is because partially undigested proteins are making it through to your large intestine and the amino acids lysine and arginine are being metabolized by bacteria into cadaverine and putrescine which are the compounds that give the smell to rotting flesh! – do not worry that you yourself are rotting, this is just temporary, but it shows that you really need to sort your digestion out. One reason for this can simply be that you have eaten more proteins than you can handle, if your gut peristalsis is too fast.

So, the third aspect of IBS is peristalsis control, also called gut motility. This is the speed at which your intestinal contractions drive food through your intestines. IBS-D can be characterized as having excessively fast gut motility or excessive peristalsis, while IBS-C is where the motility and peristalsis is too slow. If it’s too fast, then your digestive enzymes don’t have enough time to work on the food and for you to absorb the nutrients, and the food is driven prematurely into your colon which gives IBS-D. “Digestive enzyme” supplements are usually plant-based enzymes which work in a wider pH range than your own enzymes, and so can get to work on the food while it’s still in your stomach and also during transit through your small intestine, and so boosting the work of your own pancreatic enzymes, that are released by your pancreas into your small intestine. In this case, not only are you ensuring you have sufficient enzymes working on your food, but you are also gaining extra time for effective enzyme and food mixing and action. I would suggest trying some multi-component digestive enzyme supplements, and take these with at least two meals a day, particularly your heaviest meals. You want them to contain at least amylases, proteases, and lipases (for starches, proteins and fats respectively), but they can also contain other enzymes such as cellulase (for tough vegetables) and betaine HCl which helps with stomach acid production. Pancreatic enzyme production can decrease as you get older, and is also affected by stress/anxiety, vitamins, and the general health of your guts. You want to be sure that undigested food does not get to your large intestine where the bad bacteria will go to town on it, causing bloating, inflammation and pain. Using enzymes for IBS-D can improve your nutrition and help you to break out of the IBS cycle, but for IBS-D you still need to slow down that gut peristalsis.

This is affected by several things:

Caffeine massively stimulates peristalsis of the intestines and so this is negative for IBS-D, but positive for IBS-C. Between meal snacking, spicy foods, black pepper, chilli peppers, sucralose, sorbitol, black tea, coffee (and de-caffeinated coffee!), peanuts, cashew nuts, almonds, black beans also stimulate peristalsis. The general advice given for IBS is to cut down on tea/coffee stimulants, no more than 3 cups a day is the NICE guidance, but this entirely depends on whether you have IBS-D, IBS-C or a mixture of both. If you have IBS-D, you must cut out tea and coffee altogether, and for IBS-C you could try drinking more! You can “tune” your gut peristalsis by how much tea or coffee you can tolerate in a day. A mug of coffee contains about 120 mg of caffeine, there is about 50 mg in black tea, and 30 mg in the same volume of coke. A Pro-Plus caffeine tablet only contains 50 mg of caffeine (equivalent to one cup of tea!), and if you were having 10 of these a day you would rightly be concerned! Caffeine is a drug with no nutritional value. The half-life for excretion of caffeine from your body is between 5 and 15 hours depending on your health. So, it can take about three days to remove it all from your body to know how you would really perform without it. For IBS-D, you must do this, and then try re-introducing it by one cup per day (starting with tea), and then do not exceed what you determine is the optimum for you. You may only tolerate one cup of tea per day, or none at all, as in my case. Acknowledging this powerful effect is very important, because even if your natural enzyme levels are good, and you also take enzyme supplements, if your gut peristalsis (motility) is too fast you will still drive undigested food to your colon causing all of the usual symptoms simply because these enzyme reactions take TIME. Be aware that, caffeine also “drives” anxiety, agitation and nervousness. If you are also suffering from stress, then tea and coffee is definitely not helping you. Caffeine is a drug substance, it’s just that as a society we’ve mistakenly chosen to ignore that important fact, and have adopted living with a certain caffeine fuelled life as being normal. Even de-caff coffee, contains other substances that trigger gut peristalsis, so with coffee you just cannot win.

Gut peristalsis is very sensitive to adrenalin. A friend of mine says that “adrenalin not used by your muscles goes to your guts” and there may be some truth to this. If you have a busy life, you are probably not coasting along on a bed of feathers, and you probably not aware of your almost constantly high adrenalin levels – that is until you start actively lowering them. Crucially, what does work, is hard exercise to burn up your adrenalin and stop it interfering with the nervous system of your guts. My advice is to do something every day, whatever you can manage in your busy life, it will all help. It will improve your gut motility, general health, bone strength, relieve tiredness, help you sleep better, improve your mental agility and help get your anxiety under control. To many people, exercise may seem like a waste of time, but it is equivalent to spending a bit of time sharpening an axe – of course it is not wasted time, but time very well spent in servicing your whole body and mind.

Closely related to this (and possibly more importantly is serotonin), which is a controlling hormone for your bowel, and is the target of low-dose anti-depressants used for IBS treatment that are used to raise your levels of it by inhibiting its destruction. TCA’s (tricyclic antidepressants) are used for IBS-D, and SSRI’s are used for IBS-C. It is important for your doctor to get this the right way round if you choose to try the medicine route. Exercise increases your serotonin levels, but there are also two other surprising ways to do this: 1.) increase your agreeableness (and avoid hostility), 2.) bright light, i.e. get outside in the daylight as much as possible and avoid dim lighting indoors.

The fourth aspect of IBS is that some food additives are quite simply toxic for you and cause direct irritation and inflammation of the colon, allergic reaction of the colon, or they are laxatives that give you diarrhoea that you didn’t realise you were eating.

Try to seek out and eliminate “trans-fats”. These cause direct inflammation of the colon, and you will be more sensitive than most people and this confuses what is causing you trouble. Chips, hash browns, butter, doughnuts, popcorn and things cooked in cheap or old frying oil as you find in many restaurants and commercial products can give you colon pain directly through inflammation. It can take up to three or four days to recover from this inflammation, but trans-fats are bad for you in a miriad of ways (cardio-vascular and diabetes etc), not only by inflammation of the colon. A big problem here, is eating out at commercial outlets that do not change their cooking oil often enough. There is evidence that as cooking oil is re-used that the trans-fats (and other compounds) increase. So, if you want fried food as a treat, do it at home with new oil at a low temperature, and only use it once. Ideally, starches should only be boiled, rather than fried.

E407, or “Carrageenan” – is a food additive derived from a red seaweed, which is only present in small quantities as a thickener, but even at low levels it has been shown to be “highly inflammatory to the digestive tract” and associated with IBS, colitis and other GI diseases. There is loads of literature and objections to this substance on the internet. It is present in commercial Crème Caramels, soft cheeses, and many other dairy and meat products. After weeks of good health, just one of these products can knock you out for 24 hours with colon bloating and pain. I have found this by trial and error several times. Food tests show that even the food grade carrageenan contains between 2 and 25% of the non-approved “degraded” carrageenan, which is colon damaging and carcinogenic. Some food agencies now prohibit this additive altogether, and it may be responsible for a lot of IBS cases. It might be found in chocolate milk, cottage cheese, cream, crème caramel, ice cream, almond milk, diary alternatives, such as vegan cheeses or non-dairy desserts, coconut milk, creamers, hemp milk, rice milk, soy milk, and particularly processed meat. It is used extensively in cheap meats and is even injected into beef joints – so always get organic or local butcher fresh good quality meat!). It may be labelled as E407 or Carrageenan, but if you’ve got IBS, you must consider it as highly toxic for you.

Carboxy methyl cellulose (CMC) which is more widely used in the food industry, and has similar toxicology in animal studies, giving inflammation of the colon. However, the jury is still out on CMC to its impact on humans, and personally I can tolerate this.

I’ll also mention here mono-sodium glutamate (MSG). Clinical trials and several scientific articles connect MSG with IBS, so given the option to avoid it you should avoid it.

Also, NICE advises against the use of Aloe Vera for IBS - although I would say for the hydration of skin burns the pure plant gel itself is miraculous, so I would recommend you get a tube of this for your medicine cabinet for minor burns.

E338, E339, E340, E341, E450, E451 and E452, are phosphates, diphosphates or polyphosphates as different salts. Natural phosphates are essential for life, and your body is full of organically bound phosphates, however, free ionic phosphates have several problems. Firstly, they are laxatives and will give you diarrhoea (sodium phosphate was once used to prepare patients for colonoscopies!). Secondly, they are associated with cardiovascular disease and accelerated aging. Since the 1990’s we are now exposed to twice the amount of added phosphate in foods; this is bad. There are calls to have added phosphate labelled on products as a health warning. Particular culprits are mass produced sausages and processed ham and chicken slices (and other meats), some cheeses, and cola (both diet and normal). So, always buy ham “on the bone”, which usually has no phosphate added. Personally, all phosphate additives in commercially processed meats make me ill. Unfortunately, this along with the excess of fats, and added pepper means that sausages and sausage rolls are bad for you for multiple reasons, and I have resigned myself to having to quit them altogether.

Aspartame and other sweeteners definitely have a negative role to play in IBS for many people. As with the other toxins above, your ability to cope with them varies on a spectrum. If you look at some of the work of K.J. Mielke, many of these additives can be allergens or “pseudoallergens” and with time you can develop a colonic reaction to them. The best sweetener for IBS is normal table sugar (sucrose), otherwise, it’s “Stevia” which is quite a new plant based sweetener and seems to be safe for IBS.

Other points...

There is a lot of support for L-glutamine to help with repair of your small-intestinal lining; this means buying 500g of the bodybuilder powder type and having a couple of tea-spoons of this a day - one before breakfast and one just before you go to bed, and you can have this in a light cordial drink. I don’t think this is a permanent requirement, but I think it may help you recover more quickly from long term issues.

Excessive burping which starts a couple of hours after eating can be due to excessive acid being neutralized by the sodium bicarbonate that is released by your pancreas, releasing more CO2 than you can cope with re-adsorbing. The simple remedy for this is to take a couple of ant-acid tablets, or Ranitidine.

I am not a fan of pro-biotics, I have never found that they actually do anything for me compared to getting control of fasting and peristalsis. However, I have had much more success with pre-biotics such as “Bimuno”, which are basically food for your large intestine good bacteria. This helps to strengthen the lining of your colon, and further improve your resilience to potential trigger foods and inflammation. These help enormously to re-establish the good bacteria in your colon and give a noticeable improvement and stability to your GI comfort and performance, but don’t depend on them alone - it won’t last. You cannot get away with having poorly digested food getting to your large intestine.

I should add that although I eat bread and milk now in moderation, I am still cautious about high FODMAP fruits and tend to avoid them. The FODMAP fruit list is complicated, but an easy way to remember it is like this: the "fleshy", juicy fruits are bad, i.e. (nectarines, peaches, apricots, pears, apples, plums, dates etc), but segmented fruits (oranges, mandarins etc.) and all berries are generally OK as you are not likely to eat lots of them. Best of all is bananas which you can eat loads of. Microwave three of them until they are mushy and put a couple of fried eggs and cheese on them is my favourite weekend breakfast! For efficient fructose adsorption, you need glucose to be present with it in a ratio of 1:1. No enzyme will help you with fructose adsorption from fruits with excess fructose compared its glucose, but what can help is trying to balance the fructose with an excessive glucose fruit like banana. Bananas, figs, kiwis and pineapples have an excess of glucose over fructose, and so you can balance fruits with excess fructose. If you try using pure glucose powder, this will not travel slowly in your guts and you’ll still be left with excess fructose later on, so it is better to use bananas for the slow release of glucose to accompany the fructose. So you can experiment with this by making yourself a fruit salad mainly composed of bananas, and small amounts of other fruits. However, beware, that the problem with “fleshy” fruits (e.g. nectarines) is not only in fructose ratio, but also the polyols that they contain, which can still make you ill!

I should also mention hormone changes in women can be connected with IBS, affecting serotonin and the brain-gut nervous system, but being male I have no personal experience in this! Similarly, hypnosis is actually recommended by NICE as the best alternative therapy, again trying to get a grip on the nervous dysfunction. I have tried this, but for me it was just about being very relaxed with your eyes shut for half an hour, and not spoiling the fun for everybody by pretending you actually are “hypnotized”! Unfortunately, I was £75 worse off for the privilege. However, like other psychotherapies it concentrates on repeatedly putting lots of positive thoughts in your mind, boosting your self-confidence and giving strategies for dealing with negativity, so I’d say it is a good complement for your psychology and anxiety, although it will not address fundamental organic issues like SIBO.

Dealing with Flare-ups

First thing is, fix your SIBO as described above. If you still have SIBO symptoms, oregano oil capsules are very good, it is bactericidal, anti-inflammatory and can help with acute SIBO problems. It is not “gassy” as you may find with peppermint oil. Take some digestive enzymes, to ensure your digestion is complete. Fixing your SIBO has got to be your priority.

If you are on top of your SIBO, then a bowel toxin might hit you 5 to 8 hours after a meal as the food gets to your large intestine. The first line of attack in this case is ibuprofen which is far more effective than paracetamol for bowel pain, and I find that 200 mg alone is enough. Second, a couple of 10 mg Buscopan will stop the cramps. If you have IBS, always have available advance some linseed (the seeds) and natural aniseed (Star Anise), and when you are bad make the following tea: in a saucepan, add 1/2 teaspoon of linseed, ½ to 1 anise star, 1 teaspoon of sugar, a squirt of lemon juice (bottled is fine), and one full mug of water. Boil to simmer, with stirring, for 3 to 5 minutes, then sieve off the hot liquid back into the mug. This is a very effective remedy that I have used countless times, and it really does help. The reason that it helps (anecdotally) is that the “gooey” linseed extract coats the intestinal lining. There may be some truth to this, as some propose that the mechanism of intestinal inflammation is a chemical attack on the mucus lining of the intestine which then allows food particles be exposed to the more delicate tissues underneath, causing inflammation. The linseed goo would provide a temporary replacement to the mucus lining, preventing further inflammation. In fact, NICE recommends oats and linseeds for daily consumption for IBS patients.

A few of my most appreciated references…

“Treatment and Management of SIBO — Taking a Dietary Approach Can Control Intestinal Fermentation and Inflammation, by Aglaée Jacob, MS, RD; Today’s Dietitian; December 2012, Vol. 14 No. 12 P. 16”.

badgut.org/information-cent...

guidelines.co.uk/gastrointe...

3 likes
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LoveSoCal
LoveSoCal
in reply to Stuart24

That is excellent Stuart, some great advice there, thank you.

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Whitesugar

I had unpredictable diarrhoea for over 40 years. It was eventually diagnosed as Bile Acid Diarrhoea (BAD). Before you go through massive dietary changes ( I tried everything) I suggest you eliminate that condition with your gastroenterolgist. There is medication that will help you live a normal life if you have BAD.

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Emsky
Emsky
in reply to Whitesugar

The specialist doesnt want to see me again which I'm annoyed about, I'm going to ask to be tested for everything and anything that can cause diarrhoea I'm not living my life like this, I'm honest struggling to keep going on :(

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Maisie4

I had this too, l was adviced by my doctor to take fybogel that has helped a lot

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Emsky
Emsky
in reply to Maisie4

Ive had fybogel before and it makes me go to the toilet :(

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Nerissa

Hi I think it is ibs as doesn’t show up in any tests. I’ve had it for most of my life really bad as I have a bowel twice the size of normal bowel. I tried all food things and diets but one day I eat something and I’m ok next day I’d eat the same and be ill. The only thing worked for me was amitriptyline 35mg from my doctors. It help with nerves of the bowels. Sometimes I get flares up but nothing like I did before. I’ve been on for at least 20 years and it saved my life. Ask your gp about it. Like you I have rosacea last couple of years no cure for that I’m afraid yet but notice if I go on a low carb diet it makes it worse and if I eat salad cream so must be something to do with the fats in the food but definitely try amitriptyline and if I travel I take Imodium before I fly as have to lots of trips as I live Hong Kong and the UK hope it helps

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Emsky
Emsky
in reply to Nerissa

I'm already in amitriptyline, it's decreased the number of times I'm going but I'm still suffering just now as much as before

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Spencermm

I hear you, as mine happened literally overnight. Diarrhea every single night at bedtime exclusively. And it would last until my gi system was completely evacuated, 3-5 hours. My young, right out of school doctor reluctantly called it ibs and told me to continue with the pepto bismal.(I'm not sure all doctors believe ibs is real.)

I suffered another 6 months until I started the fodmap diet. I'm 90% better now.

Hope you get better :(

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Emsky
Emsky
in reply to Spencermm

Yeah I keep being told ibs:( I've been having this every day since April, I'm starting to have days I don't go as often but still not normal! Yeah already been following a diet I was instructed to by my specialist and on amitriptyline as well, but still not back to normal!

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