Hi everyone, I new to this site, I am 71, have had constant stomach pain for over a year, had colonoscopy January this year, report after colonoscopy said I had diviculiticus BUT on seeing consultant on 21/5 he said IBS, it seems report referring to Diviculiticus was error, so IBS is now confirmed.
Excruciating stomach pains 24/7, no relief from paracetamol, Buscopan or Colpremin, hot water bottle every night to ease stomach pain, loose bowel movements, reduced coffee/tea intake, lots of water, no relief at all, also tried probiotics, no relief. Has anyone any ideas of how to stop this pain?
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Lovesewing
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Hi, if you can tolerate ibuprofen, this is much more effective for tackling the pain.
The following is my general response to help people find a baseline, so please excuse the copy/paste nature of this.
First, go to the doctors and get yourself checked for intestinal infections, and whatever other tests they want to do. Most people find they are all clear, and that IBS is a condition brought on by our modern diet, freely accessible food, sedentary lifestyles and is usually initially set off by a GI infection or other trauma to the GI tract. The gut becomes hypersensitive to certain triggers, and the official description is that a physical brain-gut dysfunction develops which causes the gut to over-reacts to very mild stimuli. Be aware that you can get new GI infections, or other GI issues that are not connected to IBS, so you need to be vigilant for this, and if concerned then visit your doctor again. However this post is to help you to establish a baseline of understanding what is probably down to IBS.
After 27 years of suffering with IBS I have found that the long-term solution that actually works for controlling it is about FOUR key topics: your vitamins, daily fasting periods, toxins that are freely dished out by the food industry, and adrenalin control. You are effectively the manager of a “food nutrient extraction factory”, I know that may be obvious, but I have found that IBS is not about medicines, but about changing the way you run the factory, and learning how to get the best performance out of it. I don’t recommend any medicines, as they only work in the short-term and eventually become less effective, and I just don’t want to be dependent on medicines until one day when I have no other choice.
This is based on some excellent publications, and also by observing how healthy people live. But, if you are all clear from the doctor’s, then the first thing to sort out is your vitamins and the timing of your eating and fasting periods. An incident of food poisoning or infection can start you on a cycle that you need to make a really concerted effort to break out of. IBS causes vitamin deficiencies which are practically impossible to overcome in most people’s diets, especially because you are probably eating selectively to manage your symptoms. Your vitamin levels affect the health of your intestines, and the health of your intestines affects your vitamin absorption, so it is a vicious circle that you have to break. If your farts really stink like something died in your guts, then this is because partially undigested proteins are making it through to your large intestine and the amino acids lysine and arginine are being metabolized by bacteria into cadaverine and putrescine which are the compounds that give the smell to rotting flesh! – do not worry that you yourself are rotting, this is just temporary, but it shows that you really need to sort your digestion out.
So, get some really good, expensive, multi-vitamins (ideally constituted for your age) and take them without fail every day before your breakfast. Get a blood test for Vitamin D and get you doctor to judge your supplement level required in IU’s to get you well healthy for Vitamin D. Do not get vitamins with high calcium and magnesium content initially as certainly in large doses these minerals can mess you up as they consume your stomach acid, and magnesium particularly can give you diarrhoea. You should get enough of these minerals from your diet. If you are on the low FODMAP diet, go for all lactose free dairy products to boost your calcium, as unfortunately the diet tends to cut out almost all of the good calcium sources.
Second, sort out your fasting periods immediately. This is normally overlooked by GP’s, but is an absolutely essential element for resolving IBS. Your small intestine should be practically sterile, and your stomach acid along with bowel cleaning contractions during fasting (called MMC) will usually do the cleaning. But, you need to fast for this to be effective, and by that I mean, ABSOLUTELY NO eating in between meals, ideally drinking only water. Imagine that you never washed your dinner plates and just kept putting food on them all the time!, they would be filthy and full of bacteria. In your guts, this results in SIBO (Small Intestine Bacterial Overgrowth), which is apparently responsible for 85% of IBS cases, but is only one of factors that you need to address. You need to give your small intestine plenty of time free of food for cleaning and maintaining the factory. The modern scenario of have cupboards full of rich foods permanently available day and night is a modern luxury outside of human evolution. Your stomach will sort itself out when you have got control of your small intestine (although if you've got gastritis you'll need to finish a course of omeprazole first), and then your large intestine will improve later as nutrients are more efficiently absorbed from your small intestine. Furthermore, you should be able to avoid future bouts of gastritis as during the fasting periods, your stomach acid is more neutral at nearly pH 4. As a basic program, eat a good breakfast at say 7am (porridge with 50% almond milk or lactose free milk) or what suits you and then a good lunch at 12 o'clock - absolutely no food in between. After lunch, no food at all for at least 5 hours, and eat well again for your evening meal because it has got to get you through the night. Ideally, no food after 7 pm, no supper or snacks, no food or milk at all until breakfast the next day.
You will feel hunger in the fasting periods, but you will not starve, and this is doing you good!, You must NOT respond to the hunger - only with water or black tea. This is CRITICAL. Unless you are in a very healthy GI state, a mid-morning or afternoon snack interrupts your set meal digestion, causing SIBO and driving premature advancement of food into your colon resulting in the putrid gases mentioned above. Importantly, when you are feeling better, do not resort to your old ways, you are still recovering as you villi repair and become more efficient, and you need to make a life-style change to have this level of discipline in your eating and continue with it. It takes a few weeks at least, and you need to persevere with this. You then need to maintain a healthy and consistent way of eating and always keep the vitamins topped to prevent you from relapsing. In a couple of weeks, you should be able to be getting off the low FODMAP diet, and begin mixing back in the higher FODMAPs. Eventually, you can almost forget about low FODMAPs altogether, depending on how well your small intestine is performing and your fasting discipline.
The third aspect of IBS is that some food additives are quite simply toxic for you and cause direct inflammation of the colon, allergic reaction of the colon, or they are laxatives that give you diarrhoea that you didn’t realise you were eating. These are to be considered separate to the usual SIBO and vitamin mechanisms that you are dealing with above:
1.) Try to seek out and eliminate “trans-fats”. These cause direct inflammation of the colon, and you will be more sensitive than most people and this confuses what is causing you trouble. Chips, hash browns, butter, doughnuts, popcorn and things cooked in cheap or old frying oil as you find in many restaurants and commercial products can give you colon pain directly through inflammation. It can take up to three or four days to recover from this inflammation, but trans-fats are bad for you in a miriad of ways (cardio-vascular and diabetes), not only by inflammation of the colon. There is evidence that as cooking oil is re-used that the trans-fats (and other compounds) increase. So, if you want fried food as a treat, do it at home with good oil at a low temperature, and use it only once. Ideally, starches should only be boiled, rather than fried.
2.) E407, or “Carrageenan” – is a food additive derived from a red seaweed, which is only present in small quantities as a thickener, but even at low levels it has been shown to be “highly inflammatory to the digestive tract” and associated with IBS, colitis and other GI diseases. There is loads of literature and objections to this substance on the internet. It is present in cheap Crème Caramels, and many other dairy and meat products. After weeks of good health, just one of these products knocks me out for 24 hours with colon bloating and pain. I have found this by trial and error several times. Food tests show that even the food grade carrageenan contains between 2 and 25% of the non-approved “degraded” carrageenan, which is colon damaging and carcinogenic. Some food agencies now prohibit this additive altogether, and it may be responsible for a lot of IBS cases. It might be found in chocolate milk, cottage cheese, cream, crème caramel, ice cream, almond milk, diary alternatives, such as vegan cheeses or non-dairy desserts, coconut milk, creamers, hemp milk, rice milk, soy milk, and particularly processed meat. It is used extensively in cheap meats and is even injected into beef joints – so always get organic or local butcher fresh good quality meat!). It may be labelled as E407 or Carrageenan, but if you’ve got IBS, consider it as highly toxic for you.
In the same category is carboxy methyl cellulose (CMC) which is more widely used in the food industry, but has similar toxicology in animal studies, giving inflammation of the colon. However, the jury is still out on CMC to its impact on humans.
I’ll also mention here mono-sodium glutamate (MSG). Clinical trials and several scientific articles connect MSG with IBS, so given the option to avoid it you should avoid it.
Also, NICE advises against the use of Aloe Vera for IBS - although I would say for skin burns it is miraculous, so get a tube of the pure plant gel for your medicine cabinet for minor burns.
3.) E338, E339, E340, E341, E450, E451 and E452, are phosphates, diphosphates or polyphosphates as different salts. Natural phosphates are essential for life, and your body is full of organically bound phosphates, however, free ionic phosphates have several problems. Firstly, they are laxatives and will give you diarrhoea (sodium phosphate was once used to prepare patients for colonoscopies!). Secondly, they are associated with cardiovascular disease and accelerated aging. Since the 1990’s we are now exposed to twice the amount of added phosphate in foods, and this is bad. There are calls to have added phosphate labelled on products as a health warning. Particular culprits are mass produced sausages and processed ham and chicken slices (and other meats), some cheeses, and cola (both diet and normal). Personally, for me all phosphate additives make me ill.
4.) Aspartame and other sweeteners definitely have a negative role to play in IBS for many people. As with the other toxins above, your ability to cope with them varies on a spectrum. If you look at some of the work of K.J. Mielke, many of these additives can be allergens or “pseudoallergens” and with time you can develop a reaction to them. The best sweetener for IBS is normal table sugar (sucrose), but it will rot your teeth in tea / coffee all day unless you do extra teeth cleaning. Ideally, general advice is to cut down on these stimulants, no more than 3 cups a day is the NICE guidance.
You must remember that there are many different causes of IBS, and one person’s solution may not be another’s - because of the allergies that you may or may not have developed, plus all other factors in play.
The fourth major topic in treating IBS, is adrenalin control. The GI tract is very sensitive to adrenalin. There is some literature about serotonin along a similar vein. A friend of mine says that “adrenalin not used by your muscles goes to your guts” and there may be some truth to this. If you have a busy life, you are probably not coasting along on a bed of feathers, and you probably not aware of your almost constantly high adrenalin levels – that is until you start actively lowering them. Personally, listening to whale music doesn’t lower my adrenalin, nor does yoga, because immediately afterwards I’m back in the busy life again. Crucially, what does work, is hard exercise to burn up your adrenalin and stop it interfering with the nervous system of your guts – and this is a powerful effect. My advice is to do something every day, two or three times if you can just before eating. Do whatever you can manage in your busy life, because it will all help. It will improve your gut motility, general health, bone strength, relieve tiredness, help you sleep better, improve your mental agility and help get your anxiety under control. To many people, exercise may seem like a waste of time, but it is equivalent to spending a bit of time sharpening an axe – it is not wasted time, but time very well spent in servicing your whole body and mind.
Other points...
Red meats generally take a long time to digest, and also contain some trans-fats, but are usually tolerable. Only have them once a day, ideally for lunch, and just a light salad to go with them, not a load of starchy food or grains, as they have long digestion times. You don’t want carbohydrates being held up in transit because of heavy meat digestion late in the day.
There is a lot of support for L-glutamine to help with repair of your small-intestinal lining; this means buying 500g of the bodybuilder powder type and having a couple of tea-spoons of this a day - one before breakfast and one just before you go to bed, and you can have this in a light cordial drink. I don’t think this is a permanent requirement, but I think can help you recover more quickly from long term issues.
I am not a fan of pro-biotics, I have never found that they actually do anything, although some people may disagree. However, I am a fan of pre-biotics, which is basically food for your large intestine good bacteria. This helps to strengthen the lining of your colon, and further improve your resilience to potential trigger foods and inflammation. Again, I would only use these short-term to help you back to a good state which you can then manage with the other good behaviours. Not that they do you any harm, just another thing to buy and take.
I should also mention hormone changes in women can be connected with IBS, affecting the brain-gut nervous system, but I have no personal experience in this. Similarly, hypnosis is actually recommended by NICE as the best alternative therapy, again trying to get a grip on the nervous dysfunction. Personally, I’ve yet to try it, but I wouldn’t rule it out.
Dealing with Flare-ups
First thing is, fix your SIBO as described above. If you still have SIBO symptoms, oregano oil capsules are very good, it is bactericidal and can help with acute SIBO problems. It is not “gassy” as you may find with peppermint oil. Fixing your SIBO has got to be your priority.
If you are on top of your SIBO, then a bowel toxin such might hit you 5 to 8 hours later as the food gets to your large intestine. The first line of attack in this case is ibuprofen which is far more effective than paracetamol for bowel pain, and I find that 200 mg alone is enough. Second, a couple of Buscopan will stop the cramps. Have available in advance some linseed (seeds) and natural aniseed (Star Anise), and make the following tea: in a saucepan, add 1 teaspoon of linseed, ½ to 1 anise star, 1 teaspoon of sugar, a squirt of lemon juice (bottled is fine), and one mug full of water. Boil to simmer for 3 to 5 minutes, then sieve off the hot liquid back into the mug. This is a very effective remedy that I have used countless times, and it really does help. The reason that it helps (anecdotally) is that the “gooey” linseed extract coats the intestinal lining. There may be some truth to this, as some propose that the mechanism of bowel inflammation is a chemical attack on the mucus lining of the intestine which then allows food particles be exposed to the more delicate tissues underneath, causing inflammation. The linseed goo would provide a temporary replacement to the mucus lining, preventing further inflammation. In fact, NICE recommends oats and linseed for daily consumption for IBS patients.
A few references…
“Treatment and Management of SIBO — Taking a Dietary Approach Can Control Intestinal Fermentation and Inflammation, by Aglaée Jacob, MS, RD; Today’s Dietitian; December 2012, Vol. 14 No. 12 P. 16”.
Hi Stuart24, wow, lots of info in your email, thank you, will give it a try, so much to take in, they say Cheese, Apples & Pears are bad for IBS, what do you think about this, I'm sure it's possibly the skins of the fruit and not the fruit themselves that's ok to eat? Is dairy bad for you as well? I will print off your email and digest everything you have sent and give it a try.
Hello, yes didn't mention that I do retain some aspects of the low FODMAP diet. Pears and apples are not good, too much fructose. The only fruit I eat everyday and the safest ones are bananas, mandarins or oranges, and sometimes strawberries. Hardly ever nectarines, apricots, pears, peaches. Check out the FODMAP diet for these. Dairy depends on how well you are doing, if you are not lactose intolerant.
Hi Lovesewing, sorry to hear you are feel so awful. One of the first things I had to give up was coffee as it was causing me the most awful pain and diarrhea,I stopped tea for a while until things settled down, now I have 1 cup of tea either morning or lunch, after that it’s mint tea and of course lots of water.
Hi Ollie2, thank you for info, I'm drinking Fennel tea at the moment, which seems to settle my tummy, but I will give up coffee as I feel, as you do, it sets the awful stomach pains. Will also try mint tea to see if it helps me.
Its not a good club to be a member of but there are lots who can offer support and advice. Thru my 30+ yrs of IBS I have found a few things can help - definitely its all about the gut, but its also about your mind - do you panic, can you calm yourself down, can you thru self taught make yourself better. I'd start with writing down everything you eat and noting how you feel (as well as the time) - as not every food is going to make you instantly feel sick. You also likely have a dairy intolerance - this often causes stomach pain, bloating, diarrhea - so try and watch items such as cheese, milk, ice cream. With lactose pills or select a lactose free brand you should be okay - but experiment. Exercise - even walking, especially after eating will help. When I feel unwell I take deep, slow breaths for a few minutes - it calms you down and helps you feel like you are in control. I find gently massaging the top of my left thigh helps (apparently there is some connection with the vagus nerve. This nerve plays a major role in regulating the heart rate and keeping the gastrointestinal tract in working order. Who knows - but it helps! Eating lactose free yogurt has help me - all part of getting health bacteria back into the gut. Vitamins, as has been pointed out, are important as well. Tell yourself you are okay - this helps as well. Its true what they say - attitude is very important; healthy mind, healthy body.
Thank you very much for your useful information, I have been overly stressed this year, my husband had a second stroke,, I've had 4 kidney stents put in, hopefully 4th one is due out on 13/6, then to give me more stress our lovely female cocker spaniel had to suddenly put to sleep in April, plus I've had this stomach pain since February 2018.. I will learn to try and relax more, not to get stressed and maybe eat lactose free yougats.
So sorry to hear about all the stress - I'm sure this is a huge part of what's impacting your health. The Rainbow bridge is a crowded place - your dog will find lots of friends. A dog's only flaw is how short their stay is with us.
Just take short pauses during your day to try and take a few deep breaths - it really does help; it calms the mind and tries to bring you back into a less stress state. There are lots of mindfulness apps to help guide you or just use the tried and tested method of breathing in on a 5 count and then breathing out on a five count.
Take care.
Hi Exhausted, Ask you GP. If you have diviculiticus you have to watch what you eat, maybe this will help. My sister-in-law has this. I live in Maryland and all of my doctors have patient portals, with this all your info is in this file, tests, meds, surgery results and more. You can get to your file anytime. I’am surprised more people don’t have this, you never have too call doctors? Ask your doctors. Hope your doc has this! Sandy
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