Quick note

Regarding my previous post where I received an awful post saying how selfish I was and my mum would be “fed up” I ended up having and still am having a panic attack and crying. My mother saw my attack and we’ve agreed I’m to no longer come on this site. I come on for support (which so many have given me and I thank you for that) thank you to everyone and sorry I haven’t responded. I am not ok with comments like that. I will now respectfully cut myself off from this site. I wish you all well / I only wanted somewhere to talk and well I guess I can’t do that.

[Charom]

Hola Lilrose acabo de salir del hospital, de mi última sesión de bcg hasta noviembre. El 19 del mes próximo me ve el médico, pero ya tengo todas las pruebas, está todo perfecto.

Me preguntaba porque no escribías, no pierdas ni la paciencia, ni la esperanza. Todos superamos el día de hoy los demás días ya vendrán con cosas diferentes. Mantente esperanzada, y dale esperanza a los que sufren contigo la situación que son los que más te quieren. Bendiciones

[Houseofpain]

I am so sorry to hear this. I wrote a reply not long ago to the person who wrote that. Not happy. To be honest, I think whoever runs this group should be addressing this. Please reconsider leaving if you are finding the group generally helpful. You are incredibly vulnerable and that person was totally out of order to respond in that way.

[Maureen1958 in reply to Houseofpain]

Hi Houseofpain, regarding your comment about "whoever runs this group should be addressing this", I just wanted to put you in the picture of how this group is run. When it comes to admin, it is up to The IBS Network, not HealthUnlocked. The IBS Network is a small UK charity with only 3 or 4 people in the office to address such matters. I feel it is up to us as human beings to be more responsible when replying to other peoples posts and also not to go over the top to make the poster of a undiplomatic post feel alienated either. I am sure you will agree.

[Claire44]

Hi lilrose92, I am so sorry you are leaving the page. It should be a supportive forum and not a forum for judging others. I wish you well for the future and hope you feel better soon. I totally understand the pain you are going through. I have started using Entersol gel and it's the only thing that works for me, I've tried everything else. Please take care and I am sending you my best wishes for the future xx

[Hidden]

Don’t leave because of one unthoughtful comment. Most people on here are very kind and understanding and can relate to u in a way that most people just can’t.

[AmandaJW]

I'm so sorry you are leaving, what that person said was horrible and disgusting. You are a much better human being than that individual could ever hope to be. Stay strong and fight this illness one step at a time.

[Sheeniejay]

Please reconsider. Hampson's comments were incredibly thoughtless but so many people stepped in to defend you. We all want to help & listen. I understand that this is self-preservation but so many people do, genuinely, want to be the support you need. Would you like me to message your mother to reassure her? I'm sure many people will help you. X

[FicusElastica]

HI Ilrose. Please don't go, try and explain to your mum ... she must feel livid for your sake, but forums like this are rare and places where you can discuss your feelings and symptoms where many people can see them and respond are rare. Most people are on your side.

[Ollie2]

Lilrose92. Some people can be very careless and hurtful with their words

Maybe because of pain in their own life I’m not making excuses. That was one awful post, Hurtful is hurtful at the end of the day. I understand your mother is protective because she loves you.

Talking is so important I hope you stay

Sending you love and light. Hope you find some peace x (((hugs)))