Its so nice to find a place to feel im not alone in this awful whirlwind of issues although i wouldnt wish this upon anyone.
I have been suffering from what I have been told is Slow Transit Constipation since the age of 13 years and I am struggling now more than ever. I am now 30 years old.
This was not fully diagnosed until 2013 when I was fitted with an SNS device (similar to a pace-maker for your bowel) and it has been manageable until now. Unfortunately, this year (since January 2018) I have not had any natural movements. I have been surviving off Private Colonics which I have had to reduce to once weekly due to the cost and fitting around my work schedule.
I am still under my original hospital who has advised I need a ‘Wash out’ procedure due to now being impacted and will apply for funding for a new battery as mine is currently dead. I have no idea why the low battery was not picked up before now. They have also informed me funding is very unlikely and the next step if this is not successful is bowel removal/stoma. They are not willing to investigate why I am in the position before offering me a life changing operation.
I am very concerned there is more to this than a slow-transit?
I am beside myself in pain and discomfort, and really need to seek a secondary opinion of where I can go from here.
I’ve been to my local hospital recently after being sent to a&e from my GP after experiencing bleeding and using a home colonic kit which was given to me by the hospital. Needless to say this was unsuccessful and leaving me in more pain. My local hospital does not understand my condition or willing to investigate further as logged as a patient at the other hospital, interesting they did inform me a ‘wash out’ procedure does not exist. At the moment its just a waiting game for a new battery if i get the funding all the while im impacted and unable to go have any movements at all.
Most recently i have been asked to take a double dose of Moviprep which is suppose to make you go and completely empty. Guess what - complete fail! I haven't been and its just made me alot more bloated, I look 9 months pregnant.
I take 8xMovicol, 2xSena, Linaclotide, 2xDioctyl and 3xLactulose a day and nothing works.
I feel very alone and like I’m being past from pillar to post.
I am severely impacted, suffering from a distended abdomen, struggling to keep food down after I eat as my body can not digest and I’m in a lot of pain as you could imagine as my bowels do not work at all.
I do not understand why the hospital can not investigate this further. I am suffering each day with more symptoms and taking more time off work.
I’m not a doctor but it’s not difficult to work out if your body is full of toxins of course that will have an affect and result in further issues.