Continuing to struggle with IBS-D and Ulcerati... - IBS Network

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Continuing to struggle with IBS-D and Ulcerative Colitis (IBD) after 15 years

paulf6
paulf6

I've found IBS-D and IBD to be a moving targets. I've had both since 2006 while still working. I retired in January 2014. I cope with the IBS-D and IBD by seriously restricting my diet. I'm also lactose intolerant and have periodic bouts with ulcerative colitis. I tolerate almond milk well as well as chicken, turkey, seafood, quinoa, bananas, mangos, carrots, and green beans. Most of the time, I avoid products with gluten, since my gut seems to prefer that, although I can't tell for certain if I need to do so. I'm looking for suggestions, tips and what others do to deal with their IBS-D.

12 Replies
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I was first diagnosed by a gastroenterologist with ibd - uc in 2006, that was confirmed with a subsequent colonoscopy. It was brought under control with Balsalazide disodium that I continue to take to this day. I've only had 5 flare-ups of ibd - uc since 2006 that have been treated each time using Cortenema to bring it back into remission. In 2007, while still in remission from the first episode of ibd - uc, I began having ongoing diarrhea that the same gastroenterologist diagnosed as IBS-D. So, I have both ibd - uc and IBS-D. I have had a colonoscopy every two years since 2006. During 3 of the colonoscopies, one or more polyps have been removed and tested, each time showing them to be non-cancerous. Because IBS-D, like IBS-C is a functional disorder, colonoscopies do not reveal the existence of either. Instead, my gastroenterologist has diagnosed my IBS-D by process of elimination.

Throughout this 11 year span, I have worked with a registered nutritionist to make sure I am getting appropriate nutrition. My primary care doctor has periodically done extensive blood testing to be sure I continue to get adequate nutrition. My blood work always shows that I have no problems.

are you sure that you tolerate all the foods that you have mentioned ?? because from my experience these are the key triggers to Diahrrea !!

meanwhile I live on the trio/ combo " Librax / Buscopan and of course imodium " even though this will not totally get rid of the D , but at least it gives me more time between bathroom trips and lower the frequency ..but not a total cure .

I'm looking into a new drug called Viberzi ..waiting for it to be certified in our country as it's only available now in the U.S under prescription it's specifically designed for ibs /D .

it seems you did everything needed to be done for precise diagnosis and treatment but sometimes things are just out of control for whatever reason ..this is how frustrating is IBS /D ..it doesn't sleep or go into "remission" like IBD diseases and the medical community still didn't reach the root cause to this debilitating illness 😳

Please ask your doctor for a test for Dysbiosis.

You mentioned gut fermentation! This can be caused by having a condition called Dysbiosis, try and get a test for this!

Thanks everyone for your feedback. Since my gastroenterologist is leaving the community, I have an appointment on Wednesday, 11/29/17, with another gastro doc who has an excellent reputation and is known for working well with patients. I intend to mention to my new gastro doc the responses I've received to see where to go next. Thanks again, everyone. -Paul

Eternity78
Eternity78 in reply to paulf6

please keep us updated with your progress ..Good Luck 🌹

Hi there thank you for your reply, I would love some info sent to me. Yes I had Dysbiosis and ended up having a faeces transplant! 🙈🙈

Yes , not 100% perfectbut very good.

Have you been tested for candida overgrowth? X

paulf6
paulf6 in reply to Nicki1984

My current gastro doc was not big on looking at how to deal with IBS. I'm seeing my new gastro doc for the first time tomorrow. I intend to ask her about testing, elimination diets, etc. I'm going to start from scratch to see how she can guide me. I'll let the group know what I find out.

Nicki1984
Nicki1984 in reply to paulf6

Good luck

Hidden
Hidden

Hi Pail,

If nutrition has taken you as far as it can, it's maybe time to consider other potential root causes. This article may be of interest: sickofibs.com/ibs-symptoms/...

Alison:)

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