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Phantom smell and IBS flare up

Hi all. So i was wondering whether anyone has had similar issues as this. I was diagnosed about 2yrs ago with IBS after a colonoscopy gave me the all clear for other concerns. Since then i have been smelling a strange smell, no one can smell it nor can i describe it, it varies from something "damp" to something "rotten". One thing i have noticed recently is when my IBS is about to flare up the smell i smell gets really, really strong.

I've tried speaking to my GP about it but they seem uninterested in doing any further tests so im reaching out to other sufferers who may have had something similar.

Thanks in advance.

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Hi davep

Sorry to read about your phantom smell with IBS. It might be bacterial overgrowth as I've had something similar with colitis and was treated successfully with a particular antibiotic Metrondonizole. Might be worth asking your GP about it although you say he wasn't very helpful!. Presumably as you were diagnosed with IBS after colonoscopy your not seeing a Gastro consultant because you could ask him?. Just a thought I hope you get it sorted soon.

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thanks for the reply Misty14, ill be sure to follow up with my GP next time i visit.

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Best of luck davep. Keep us posted.

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I had this problem i had ibs and a smell it is bad bacteria in the gut and colon.... i didnt go down the antibiotics road as if u look up candida it make it worse....

So i did it naturally... i cut out all sugar,gluten and dairy for 6 weeks.

I took peppermint caps, dida tablets, probiotics and digestive enzymes 2 times a day for that amount of time to and within 3 weeks the pain of ibs had gone, the smell had gone i was 90% better!

Please try this..... look up candida or leaky gut

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thanks for the reply lulububs, very helpful and will give it a try.

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thanku davep13 i will try that it is so so embarrasing

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if i hadn,t read your reply dave my reply should have been to lulububs3 so sorry replied wrong one how ever hope it is working for you.

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thanku i also suffer this prob. and it is so embarrasing people do not understand the fever and pain associated with it and just shrug it off or take the micky thanku i will give this a go.lulububs.med.73

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I have self diagnosed a condition called TMAU - look this up.

I have had these odd smells since I had gastroenteritris. If you cannot eat fish or seafood without the smells coming it may be this caused by secondary TMAU and bacterial overgrowth. Also meat and cauliflower, beans. peas and broccoli can cause it. I find onions and leeks cause a damp smell from me. It is not just a problem with fish, also fresh eggs and eggy products are a no no. I found this out first after drinking some advocat!

If it is this condition then foods high in choline bring it on. See any websites that mention this condition. It can be diagnosed but there are many gps that have never heard of it.

Trimethylaminuria is a disorder in which the body is unable to break down trimethylamine, a chemical compound that has a pungent odor. Trimethylamine has been described as smelling like rotting fish, rotting eggs, garbage, or urine.

There are several things that help like I find eating parsley the curly leaf kind has a deoderising effect, some people have charcoal tablets that help (did not help me) and also supplement with vitamin b complex.

You can have antibiotics and probiotics but best to see a specialist that knows about this, There is one in London - Dr Lachmann and take some info to the GP so they know it is a real condition if you want to be tested. You have to eat a lot of the stuff to cause the problem first if you are to be tested for the reaction. So I haven't gone yet as I would need a week off work.

see tmau.org.uk/index.php/getti...

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It very hard to do but it 100% worked i can more or less eat what i want. I never went back to sugar much as i got used to no sugar and i still take the supplements and it still works

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Possible imbalance off your gut bacteria. Have a good research of gut bacteria and digestive enzymes. Reccommend taking a good probiotic long term and digestive enzymes. Bad bacteria feeds off sugar I always find this a trigger.

whole9life.com/2012/09/dige...

whole9life.com/2012/04/prob...

Good luck x

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Hi,

The only thing that occurred to me was that the ‘phantom’ smell is actually caused by some brain condition - I think I’ve heard of such effects before. The fact that it coincides with an IBS flare-up could be because they are both the result of some other change in your body chemistry - worth asking your GP?

I hope things soon improve for you.

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thanks for all the replies guys, will deffo take your advice on board.

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drs. are not allowed sometimes to tell you all even when they know what problem is.also they do not know yet what actually causes i.b.s.. this imfo. came from n.h.s. i got on my computer notebook.

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I have had that issue. It’s like you are the only one that seems to smell it. Thank God. I have switched my diet to Paleo. I don’t need to lose weight, heaven knows, I’m like a goose everything goes right thru me if I’m not medicated. I use the Paleo way of eating because it seems to help with the inflammation. Do you take meds every day. If so, what do you take?

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i dont take meds every day, only when i have a flare up. When it does flare up i usually get colofac(sp?) Thankfully ive been ok recently

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So thought id give everyone an update. Ive been having probiotics twice a day, one drink of a morning and a yoghurt as a dessert after evening meal. Theyre helping i would say, the phantom smell is becoming less problematic. However, i regressed back to child hood at the weekend and had some fish fingers, ugh, the smell was near instantaneous so i guess i wont be having them any time soon.

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