New Here.: Hi there, I've been thinking about... - IBS Network

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Hi there, I've been thinking about joining a help group for some time so finally decided to do it today. I've had problems with my bowels since a young age, from the age of 11 i was diagnosed with a nervous bladder which was terribly embarrassing and i got bullied a lot for it. That's one of the things that's followed me into adulthood, i pee about 3 to 4 times a night so not getting much sleep and it seem's that i only have to look at water and i want to pee! I've suffered from IBS-D since my early twenties and still suffer from it now. I used to work in a bar and when i'd have an attack it was again embarrassing as well as frightening, painful, severe and so on. Eventually it was one of the reasons i quit after six years, "Normal" people couldn't understand why i had to go the loo all the time and again just thought it was funny. I still have random attacks out in town or a night out with friend and i have to pump myself full of Imodium if i ever journey to another town or city.

I've been to the doctors numerous times and he has put my symptoms down to anxiety which i agree with and yet with no real cure for IBS i have learn't to cope with it the best i can. To conclude, joining this group i hope to continue coping with condition knowing that i'm not alone.

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6 Replies
merlin19 profile image
merlin19

Sorry to hear you are suffering, although my symptoms are different to what you describe I understand totally having to cope with pain, embarrassment, and just overall impact on your life. Good for you for joining here, I have found it really helpful. There's a lot to be said for being able to talk to people in similar situations and know you're not alone - all the best!! :)

runswithdogs profile image
runswithdogs

You're come to a good place. You're not alone - folks in this space are all suffering from variations of the same thing. We're here for you to talk about the disease, solutions that have or haven't worked for us, and be mental support that understands the struggle and embarrassment that goes along with this invisible disease.

BarneyB profile image
BarneyB

Hi - and welcome! You will certainly find lots of understanding and support here.

I have also had IBS since the age of 11 - from a very bad bout of food poisoning. My digestive system has never been right since, and here I am two decades later and things were getting worse for me, but I tried the Low Fodmap diet, and have had relief from many of my symptoms. It has helped a lot of others on this site, so it may be something you could look into, if you haven't already.

Also, you say you have anxiety, - has your GP mentioned Cognitive Behaviour Therapy?

I had very bad anxiety and panic attacks, and while CBT isn't a cure, it helps you learn to control the anxiety and understand it better. It does all take a long time, though, as sadly there is no quick fix, and what suits one person doesn't suit another. But at least on here we can all discuss our problems and frustrations in an understanding and compassionate environment.

Good luck, BarneyB

in reply toBarneyB

Hi there, thank you so much for your support, it mean's a lot. Yes in the past i have had CBT and it has helped tremendously with my anxiety and panic disorder but sadly not with my IBS. Sometimes i can expect an attack after a night out with friends but other times it's just random. I'm glad i know where all the loo's are in my town to be able to run to them quickly! :S

jenishpatel87 profile image
jenishpatel87

Hi .. I can understand your situation. Do not worry, you will find lot of people here having somewhat similar issues as yours. You will definitely find some help.

I have IBS since April 2013 and have tried various remedies. You can check my story , you may find something useful: healthunlocked.com/theibsne...

For the anxiety issues, I would say try some holistic therapy treatment. There are lots of options available. Personally, I have tried SKY breathing (you can google it out on art of living) and I still do it everyday. I have felt a genuine improvement in my stress ever since then, which also helped me to heal my IBS symptoms. You can try it out.

Hope it helps :)

in reply tojenishpatel87

Hi , thanks for your reply and support. I've had CBT and counselling in the past for my anxiety and panic disorder and thankfully they've worked great but unfortunately not for my IBS. I think I've just accepted it now as part of my life,..still it's really good to know i'm not alone. Really glad you've found something that helps :)

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