Research Study Help: The self help group I run... - IBS Network

IBS Network

48,748 members16,076 posts

Research Study Help

Matt_Leeds profile image
6 Replies

The self help group I run in Leeds has been fortunate to work with a number of healthcare professionals who are looking to help IBS sufferers deal more effectively with their condition.

One of the ways we are doing this is by developing links with researchers and one such study now requires our help. Please can you have a look at their message below and offer some thoughts on how they might best proceed.

Thanks

Matt

Leeds IBS Self Help Group

A group of Doctors, academics and patients are working together to develop an IBS research study. The team want to look at the effects of a drug called Amitriptyline. The team are keen to find out what people with IBS think about the planned study to ensure that is relevant and helpful for patients.

Amitriptyline is sometimes used to help manage IBS. It is also used to treat depression. Amitriptyline may help IBS not because of its effect on mood, but because it can relieve pain and alter bowel activity. The aim of the research is to find out what happens when Amitriptyline is prescribed for IBS by GPs. In order to find that out, patients with IBS will be invited to join the study. If they agree, they will then be randomly allocated to receive either Amitriptyline or normal GP care. Patients will then be asked to complete questionnaires about their symptoms and quality of life.

The team would welcome any feedback about this study idea. Comments will only be used to inform the design of this study and will not be shared elsewhere. The team are particularly interested in whether you think patients would want to take part in this study. If you were invited to take part, what would encourage you or put you off? How would you feel about being randomly allocated wither Amitriptyline or routine care?

Any comments would be gratefully received. We really value the perspective of people living with IBS. Many thanks in advance.

Written by
Matt_Leeds profile image
Matt_Leeds
To view profiles and participate in discussions please or .
Read more about...
6 Replies
JH16 profile image
JH16

I'd be happy to help with feedback- please let me know how I can do this.

Matt_Leeds profile image
Matt_Leeds in reply toJH16

It's essentially looking at how you feel about being giving the option of taking Amitriptyline or just receiving standard care. The original post outlines the idea for the study and then includes the questions in the last but one paragraph.

Thanks for your interest

rach1626 profile image
rach1626

Hi, please could you let me know when & where your self help group runs? I live in Leeds & have been looking for somewhere like this to attend, many thanks

Matt_Leeds profile image
Matt_Leeds in reply torach1626

It'd be great to have you along. All the details at letscureibs.com/leeds-self-...

rach1626 profile image
rach1626 in reply toMatt_Leeds

That's great, thank you

Mc89 profile image
Mc89

Hi, don't want to be negative but have taken amitriptyline for about 13 years & can't say it has made any difference to my IBS. I initially took it to help me sleep after a period of stress/insomnia, I still take it to help me sleep & I think it helps with general bowel aches & pains but not with day to day IBS. It may help others though so please keep trying to find something that works!

Not what you're looking for?

You may also like...

IBS research study in Reading/London looking for participants..

I found this NHS/Phd study which sounds really good and you can do it even if on low fodmap diet,...
LFHell profile image

IBS research project

Hi Guys, I am doing my final year project on the topic of IBS. The study is looking at whether...
Kati2016 profile image

More IBS Research

Hi All I was contacted this morning by email by another doctor at the same university as the other...

IBS Study - Can you Help? Quality-of-life in IBS sufferers: the influence of illness perceptions, symptom severity, and coping.

You are invited to participate in an online study which is looking at factors that may influence...

Can you help support future IBS Research?

Hi all, my husband is supporting me in my search for help with my IBS Symptoms through involvement...
Maureen1958 profile image

Moderation team

IBSNetwork profile image
IBSNetworkPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.