IBS Research: Hi all I hope you are all having a... - IBS Network

IBS Network

47,548 members β€’ 15,587 posts

IBS Research

β€’23 Replies

Hi all

I hope you are all having a good day so far and those of you in the UK aren't suffering too much with the amount of wind and rain we are getting, I hope none of you are coping with flooding.

My daughter a while ago sent me a link to IBS research so I joined and am pleased to say I've been accepted. I had a Zoom call with a Doctor yesterday who is a Clinical Research Fellow

at the Institute of Neurogastroenterology in Queen Marys University, London. I'm wearing a couple of devices and one is a wristband and the other is a chest monitor. I went through a questionnaire as a test whilst we were on the phone and I was surprised how many symptoms you can get with IBS. You would have thought that as I've had it since 1996 I would have known most of them.

The study lasts 7 days and then I'll send the equipment back in the post. It's taking part in research that eventually finds either a cure of treatment that works. I'd love to see the results and will ask the doctor if I'll be able to or when they'll be published.

I hope you all have a good day even though the weather is rubbish in the UK.

AliciaπŸŒˆπŸ‘πŸ˜Š

23 Replies
β€’
Kitten-whiskers profile image
Kitten-whiskers

This is fabulous Alicia, how very interesting. I hope things are learnt to help with all the suffering as this condition takes over your life, and there is still a lack of understanding, I feel it gets minimized by the GP and others that are not sufferers

What your doing it great, thumbs up to you xx

in reply to Kitten-whiskers

I really hope so as well and agree there really is a lack of understanding, there are doctors that say 'oh, it's only IBS', now that is what annoys me.

Thank you Debs. I'll post the results on here xx

Maureen1958 profile image
Maureen1958

Hi Alicia, so what other symptoms did they come up with? Just curious, if you can remember.

in reply to Maureen1958

Ah, now you've asked me. I'll try and remember: headaches, muscle pain, nausea (that's my main symptom), light heaviness. I'll post when I remember more. There are the obvious ones of course like tummy pain etc.

Good morning Alicia yes it's good news. My uncle was suffering with IBS he didn't know he had it he is 84 but as I had knowledge from my own experience even tho mild as I mentioned, and with the help of his daughter we got him changing his eating I'm afraid a lot of doctors just want to give pills out and are uneducated in diet, so many in the UK have it and just suffer for so long my nephews wife for one, and there are so many conditions that are part of what my specialist called the IBS family, I've asked my friend if she has that video I saw from quora digest as I sent her i want to keep my gut lining strong. Yes weathers arful soposed to get worst here i am concerned about global warming and it's gone to the background of news with covid and other issues. Hope you have a good day and don't get too bored me and pixie are still in bed lol he's been out and we've had breakfast xxπŸ†πŸ”₯

in reply to

Well done on spotting it and helping him. I agree it's just handing out the pills, IBS is diet related, as well as stress of course.

I have a couple of books to read on the gut, there's so much to IBS. Some doctors almost dismiss it, I remember almost begging my doctor to refer me to a Dietitian. The Low Fodmap diet has been my saviour but since reintroducing foods and trying to change my diet for the long term can still be confusing.

I'm also concerned about the planet and I don't think the powers that be are.

The weather has improved a great deal here, we actually have sun so I've got washing on the line.

Dave went out this morning but he's been in for quite a long time and is sleeping on the top of the stairs.πŸŒˆπŸ˜ŠπŸ™

TrickTree profile image
TrickTree

Hi Alicia

I’m really interested in research would it be possible to share the link

Cheers

Danny

in reply to TrickTree

Hi Danny

It was in the August edition of the IBS Network update, I'll send you a PM.

Alicia

Baenav profile image
Baenav

Hi Alica, please to see that you’re helping with this. I was invited to a study just before lockdown but travel was curtailed and and a result, my study ceased. Would certainly be interested in helping in another. Is there a link to the study?

in reply to Baenav

Hi there

That's such a shame that the study was ceased and not put on hold, that would have been better. I'll send you a PM with the details.

Alicia

Baenav profile image
Baenav in reply to

Thank you, that’s extremely kind of you.

in reply to Baenav

You're welcome.

bigbunbun3 profile image
bigbunbun3

Hi Alicia, this is great news, good for you. Yes defo keep us posted on the results πŸ€— x

in reply to bigbunbun3

Thank you. I will certainly keep everyone posted when I know the results.

Alicia x 🌈😊😻

Pueblo profile image
Pueblo

That's brilliant. Keep posting ! Would love to do that but live in Spain ! One GP I spoke to seemed to have never heard of ibs!

in reply to Pueblo

Thank you. Such a shame that you wouldn't be able to do it because of living in Spain. I cannot believe that a GP has never heard of it!!

Maureen1958 profile image
Maureen1958

Could you send me a link as well please Alicia, I can't seem to find it.

in reply to Maureen1958

Hi Maureen

I've sent you a message, hope this helps.

Alicia πŸŒˆπŸ‘πŸ˜Š

Maureen1958 profile image
Maureen1958 in reply to

Thanks, I take a look!

in reply to Maureen1958

Brill πŸ‘πŸ‘πŸŒˆ

Gavj7804 profile image
Gavj7804 in reply to

Hi Alicia, I would be interested in taking part, could you send me the link please.

Ta Gav

Holder profile image
Holder

Hi Alicia,

QMU is just round the corner from me, do you know if they're still accepting applicants? I'd love to help!

Thanks x

in reply to Holder

Hi there

I'll send you a private message with the information. How fortunate that they are just around the corner from you.

Alicia x

You may also like...

IBS Research

edition: Participants wanted for IBS research Researchers at Queen Mary University of London are...

IBS Research

Update on the research I'm taking part in. I've just had an email back from the Doctor that is...

IBS research

Psychology at Liverpool John Moore's and I am doing my research project on the negative effects of...

Can you help support future IBS Research?

many of you as possible could take part, you basically need to identify 4 questions about IBS you...

Doctor-patient relationship and IBS coping - Research

this but I'm hoping to get 30 more participants before running data analysis, so if you are able to...