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Erfa to Liothyronine Thybon Henning Dose Conversion
Hello, I used to take ERFA and levothyroxine but as my T3 was slightly high, my new Dr has put me on Thybon Henning so it will be a bit easier to manage T3 and T4 dosing (it's difficult to cut down on NDT as if I lower it I'm also lowering my total T4 dose, and I run low in T4). I have a feeling he
Hello, I used to take ERFA and levothyroxine but as my T3 was slightly high, my new Dr has put me on Thybon Henning so it will be a bit easier to manage T3 and T4 dosing (it's difficult to cut down on NDT as if I lower it I'm also lowering my total T4 dose, and I run low in T4). I have a feeling he
hormonaljunkie
in
Thyroid UK
6 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
6 months ago
Natural Desiccated Thyroid, NDT, Sources
Hi everyone, I have been on NDT from Thailand for over a decade and I have only just ordered Thyroid-S. The price has gone up and I was a bit worried because I wasn't sure if the supplier would still be available. There used to be so many suppliers and with more competitive prices over there. Now, this
Hi everyone, I have been on NDT from Thailand for over a decade and I have only just ordered Thyroid-S. The price has gone up and I was a bit worried because I wasn't sure if the supplier would still be available. There used to be so many suppliers and with more competitive prices over there. Now, this
Isilune77
in
Thyroid UK
6 months ago
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IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
6 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
6 months ago
Thoughts on using AI for ADT decisions
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
Mgtd
in
Advanced Prostate Cancer
6 months ago
High risk and ADT duration since PSMA
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
SimMartin
in
Advanced Prostate Cancer
6 months ago
Country Health practice
If anyone uses Country Health for their thyroid support, please can you let me know how you got on. I am wondering if it will be cheaper to go down this route for a private prescription for my ndt. thank you x
If anyone uses Country Health for their thyroid support, please can you let me know how you got on. I am wondering if it will be cheaper to go down this route for a private prescription for my ndt. thank you x
Lynneypin
in
Thyroid UK
6 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
6 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
6 months ago
Is this too little or too much NDT Armour symptom?
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Gillybean1
in
Thyroid UK
6 months ago
Switching NDTs
Hiya. I am currently trialling a switch to another NDT. I would be grateful if any folk that have done this could advise on dosing during the switch please. Would it be a case of just switching at the same dose, or starting again? Any thoughts would be much appreciated, thanks!
Hiya. I am currently trialling a switch to another NDT. I would be grateful if any folk that have done this could advise on dosing during the switch please. Would it be a case of just switching at the same dose, or starting again? Any thoughts would be much appreciated, thanks!
MindfulMoments
in
Thyroid UK
6 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
6 months ago
De-escellation of ADT with modern RT treatment
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
Don_1213
in
Prostate Cancer Network
6 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
6 months ago
Switching from NDT back to T3 only
Is something like NDT (T4) withdrawal symptoms possible? To be exact, if you are on T3 only but due to some circumstances have to take NDT for a couple of weeks as a replacement and then again can switch back to T3 only, then because of the longer half-life of T4 (up to 9 days I've read), can it become
Is something like NDT (T4) withdrawal symptoms possible? To be exact, if you are on T3 only but due to some circumstances have to take NDT for a couple of weeks as a replacement and then again can switch back to T3 only, then because of the longer half-life of T4 (up to 9 days I've read), can it become
Nipitiri
in
Thyroid UK
6 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
6 months ago
Infusion how long to "kick in"? Hehe.
I finally got my iron infusion (yay!) but it hasn't "kicked in" yet. No pun intended. Last night I had one of my worst yet. Zero sleep and threw up water & zofran all night. When I had my infusions in 2020 I was fresh out of COVID hospital and quite ill with pleural effusions... plus having been
I finally got my iron infusion (yay!) but it hasn't "kicked in" yet. No pun intended. Last night I had one of my worst yet. Zero sleep and threw up water & zofran all night. When I had my infusions in 2020 I was fresh out of COVID hospital and quite ill with pleural effusions... plus having been
SkyCop
in
Restless Legs Syndrome
2 years ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
6 months ago
SIDE EFFECTS FROM HYPO MEDS
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Fairydancer
in
Thyroid UK
6 months ago
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