Search
Search
About
Log in
Join
Experiences with
Xeljanz
Posts
Communities
80 public posts
Filter results
Update, another change of biologic š
So I visited my Rhemy today at his request, only to be told: - inflammation has increased two fold having been on this
xeljanz
, tofacitinib since 5th September 2018. Things seems to have only got worse with inflammation spreading rapidly.
So I visited my Rhemy today at his request, only to be told: - inflammation has increased two fold having been on this
xeljanz
, tofacitinib since 5th September 2018. Things seems to have only got worse with inflammation spreading rapidly.
Hessie5
in
NRAS
6 years ago
Update and has anyone tried Collagen for pain ?
She has said I must take the 2 tablets of
Xeljanz
not just 1 per day but 2. I have assured her I shall start today. I just find when I take it I seem to be in more pain! So I just think whatsās the point. I don't understand what has made my markers so high as doing everything the same.
She has said I must take the 2 tablets of
Xeljanz
not just 1 per day but 2. I have assured her I shall start today. I just find when I take it I seem to be in more pain! So I just think whatsās the point. I don't understand what has made my markers so high as doing everything the same.
Hessie5
in
NRAS
6 years ago
Xeljanz
Now I am on
Xeljanz
(toficitinib) Someone on it? What are your experiences. šBas Ps i am also on prednisolon, sulfasalazine, plaquenil for my RA
Now I am on
Xeljanz
(toficitinib) Someone on it? What are your experiences. šBas Ps i am also on prednisolon, sulfasalazine, plaquenil for my RA
bassiefromholland
in
NRAS
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Finally YES to an MRI
Hoping the
Xeljanz
kicks in soon as so far all I have been experiencing is swollen stiff sore fingers and tender ankles. The foot surgeon could not understand why my rheumatologist would not let me have an MRI, he said he is going to ask him.
Hoping the
Xeljanz
kicks in soon as so far all I have been experiencing is swollen stiff sore fingers and tender ankles. The foot surgeon could not understand why my rheumatologist would not let me have an MRI, he said he is going to ask him.
Hessie5
in
NRAS
6 years ago
Update on Tofacitinib
- so now start on
Xeljanz
Tofacitinib 5th September, I admit I was anxious, but having suffered a major flare in my right shoulder 2 days prior, I was in such pain I vowed to start, with the encouragement of some of the lovely people on here too.
- so now start on
Xeljanz
Tofacitinib 5th September, I admit I was anxious, but having suffered a major flare in my right shoulder 2 days prior, I was in such pain I vowed to start, with the encouragement of some of the lovely people on here too.
Hessie5
in
NRAS
6 years ago
Flare in ankles/swelling won't resolve. Anybody have suggestions to help ankles and swelling ?
I went on
Xeljanz
and it did not work took a walk and both ankles swelled bad back in June. Been on humira and leflunomide, prednisone and changed diet but still have swelling in ankles. I don't want to increase prednisone hope it resolves any suggestions, or experiences ?
I went on
Xeljanz
and it did not work took a walk and both ankles swelled bad back in June. Been on humira and leflunomide, prednisone and changed diet but still have swelling in ankles. I don't want to increase prednisone hope it resolves any suggestions, or experiences ?
ragurl
in
NRAS
6 years ago
Xeljanz
Xeljanz
(Tofacitinib) Anyone on it het? And what are you experiences? Bas from Holland
Xeljanz
(Tofacitinib) Anyone on it het? And what are you experiences? Bas from Holland
bassiefromholland
in
NRAS
6 years ago
Worse before better? RA new meds
Hi everyone, Started my new biologic yesterday Tofacitinib by
Xeljanz
5mg. I had been off meds for almost 6 weeks, was going through a testing flare on Monday which jumped from right shoulder to neck to left shoulder blade, albeit it has eased. I commenced my first tablet yesterday at 11a.m.
Hi everyone, Started my new biologic yesterday Tofacitinib by
Xeljanz
5mg. I had been off meds for almost 6 weeks, was going through a testing flare on Monday which jumped from right shoulder to neck to left shoulder blade, albeit it has eased. I commenced my first tablet yesterday at 11a.m.
Hessie5
in
NRAS
6 years ago
Major Hip Pain .
I stopped
Xeljanz
on Friday. The major headaches stopped right away however now I find myself unable to stand or walk. I restarted
Xeljanz
this morning but have ultrasound tomorrow in Vancouver. I am hoping the pain resolved itself tonight.
I stopped
Xeljanz
on Friday. The major headaches stopped right away however now I find myself unable to stand or walk. I restarted
Xeljanz
this morning but have ultrasound tomorrow in Vancouver. I am hoping the pain resolved itself tonight.
Damaged
in
NRAS
6 years ago
Update on hip drama!
One surprise has been that the headaches have not returned despite going back on
Xeljanz
. Yahoo something positive!
One surprise has been that the headaches have not returned despite going back on
Xeljanz
. Yahoo something positive!
Damaged
in
NRAS
6 years ago
Yet another new med Xeljanz TOFACITINIB
As mentioned, finally new biologic collected today. I was on Entercept before but did nothing for the inflammation. Having reviewed this new biologic not many people on this, reviews hmm okayish...I shall provide updates. At the moment I have a cold so advised not to start until better. Its been odd
As mentioned, finally new biologic collected today. I was on Entercept before but did nothing for the inflammation. Having reviewed this new biologic not many people on this, reviews hmm okayish...I shall provide updates. At the moment I have a cold so advised not to start until better. Its been odd
Hessie5
in
NRAS
6 years ago
Plaquenil and RA
I have also taken Enbrel, Humira, Remicade, Simponi, Methotrexate, and currently on
Xeljanz
. Each one acted differently. I believe the plaquenil was the most helpful but it really gave me GI troubles.
I have also taken Enbrel, Humira, Remicade, Simponi, Methotrexate, and currently on
Xeljanz
. Each one acted differently. I believe the plaquenil was the most helpful but it really gave me GI troubles.
padunnivan
in
NRAS
6 years ago
Happy Update š
It seems I have responded well to cortisone injections in both shoulders and
Xeljanz
. For the first time in three years I am walking again. I am currently walking 5 miles a day minimum. I am still tired but getting it done. I quit smoking in May.
It seems I have responded well to cortisone injections in both shoulders and
Xeljanz
. For the first time in three years I am walking again. I am currently walking 5 miles a day minimum. I am still tired but getting it done. I quit smoking in May.
Damaged
in
NRAS
6 years ago
Update
I have started
Xeljanz
this week. So far so good.
I have started
Xeljanz
this week. So far so good.
Damaged
in
NRAS
6 years ago
Xeljanz and knee pain
Xeljanz
has helped remove nodules that I have had for 15 years so it is doing some good but not sure it's worth staying on due to knee pain, fatigue and constant sore throat. Anybody relate ? Should I ask to change back to humira or will
Xeljanz
get better ? Help?
Xeljanz
has helped remove nodules that I have had for 15 years so it is doing some good but not sure it's worth staying on due to knee pain, fatigue and constant sore throat. Anybody relate ? Should I ask to change back to humira or will
Xeljanz
get better ? Help?
ragurl
in
NRAS
6 years ago
Olumiant , Xeljanz, experiences?
Hi, What are your experiences from Olumiant (baricitinib) or
Xeljanz
(tofacitinib) ? Side effects? Iām on Simponi rigth now but will maybe change to this new ādrugā. I have a very active RA Kind regards Anna in Sweden
Hi, What are your experiences from Olumiant (baricitinib) or
Xeljanz
(tofacitinib) ? Side effects? Iām on Simponi rigth now but will maybe change to this new ādrugā. I have a very active RA Kind regards Anna in Sweden
sunflower68
in
NRAS
6 years ago
Awful rashes! Help!
Hi all So Iām on methotrexate and
xeljanz
(biologic). Last few times Iāve missed a couple of doses of the biologic (the drugs were late coming into the pharmacy), Iāve been covered in itchy red hives all over my body and neck. The minute I take the biologic, the hives go away.
Hi all So Iām on methotrexate and
xeljanz
(biologic). Last few times Iāve missed a couple of doses of the biologic (the drugs were late coming into the pharmacy), Iāve been covered in itchy red hives all over my body and neck. The minute I take the biologic, the hives go away.
Anichou
in
NRAS
6 years ago
Xeljanz / Tofacitinib
Just wanted some feedback on the
Xeljanz
Iām supposed to start Saturday
Just wanted some feedback on the
Xeljanz
Iām supposed to start Saturday
SassyRA
in
NRAS
7 years ago
Xeljanx XR and Hep C
After failing quite a few biologics, my Rheumy is starting me on
Xeljanz
XR. I have not received the shingles (not live) vaccination yet so keeping my fingers crossed that I don't get them. My biggest concern is that is can reactivate Hep C ... has anyone taken
Xeljanz
and had it reactive it?
After failing quite a few biologics, my Rheumy is starting me on
Xeljanz
XR. I have not received the shingles (not live) vaccination yet so keeping my fingers crossed that I don't get them. My biggest concern is that is can reactivate Hep C ... has anyone taken
Xeljanz
and had it reactive it?
Cin111
in
NRAS
7 years ago
Xeljanz
Can anybody share experience with
Xeljanz
? My doctor wants me to try it seeing Enbrel isn't working as well as he would like?
Can anybody share experience with
Xeljanz
? My doctor wants me to try it seeing Enbrel isn't working as well as he would like?
ragurl
in
NRAS
7 years ago
1
2
3
4
Next page
Filter results
Clear filters
Posted in
All communities
NRAS
49 results
LUpus Patients Understanding and Support
11 results
Cure Arthritis Community
7 results
View top 10 communities
Sort by
Most Relevant
Newest