Worse before better? RA new meds : Hi everyone... - NRAS

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Worse before better? RA new meds

Hessie5 profile image
5 Replies

Hi everyone,

Started my new biologic yesterday Tofacitinib by Xeljanz 5mg. I had been off meds for almost 6 weeks, was going through a testing flare on Monday which jumped from right shoulder to neck to left shoulder blade, albeit it has eased. I commenced my first tablet yesterday at 11a.m. This morning I awoke feeling awful my joints in my hand, and middle index finger swollen, my feet tender and sore too, my ears ringing.

I am now reluctant to take another pill today ! (Suppose to be out at an event that I cannot miss this evening).

Has anyone taken their medication and felt worse than when the had not taken it? If so did you continue to consume?

I have just called my Rheumy let’s see what he has to say. Happy days 😬 - trying to smile through the soreness and stiffness.

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Hessie5 profile image
Hessie5
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5 Replies
Gnarli profile image
Gnarli

Your rheumy should be able to give you an answer but it is possible that the symptoms you're getting are just unlucky coincidence perhaps? I truly hope you get better soon

J

I don’t know Hessie but had major flare when off meds for over a month before biologics so could be that? Also noticed more pain on day after injecting both MTX and benepali which later subsides. Hope rheumatology has some answers & you feel better soon x

Hessie5 profile image
Hessie5 in reply to

Thank you for the feedback - I was told to continue, I shall take before bed and hopefully can sleep through. Appreciate you comments. Wishing you well x

allanah profile image
allanah

Just my experience but i often have a sore day after my biologic. I rest up and don't plan anything. But do check its not a reaction with your doc x

Hessie5 profile image
Hessie5 in reply to allanah

Thanks Allanah - I have an event I must go to and my daughter’s birthday so no resting for me 😊 I shall persevere and see how it goes. Hope you are doing well. x

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