Finally YES to an MRI: Hello all, Just wanted to share... - NRAS

NRAS

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Finally YES to an MRI

Hessie5 profile image
7 Replies

Hello all,

Just wanted to share my good news re I CAN HAVE THAT MRI! Woo hoo 😀

I have been waiting over 15 months for this. It had to take me paying private to see one of the top ankle surgeons who told me I must go back and insist to help with the RA deterioration in my ankles. It was in one now spread to the second ankle. Hoping the Xeljanz kicks in soon as so far all I have been experiencing is swollen stiff sore fingers and tender ankles.

The foot surgeon could not understand why my rheumatologist would not let me have an MRI, he said he is going to ask him. I was told by one of the drs at my local clinic it was too expensive, and by my rheumatologist that it would make no difference as I have RA an MRI would not change that. I went back to see the practice owner who pushed for me and it paid off.

Sorry to go on but I am pleased. I just don't understand how the young lady at work who says she has had three MRI in pretty quick succession. She did recommend I contact her hospital, however I do not live in East London.

Hope everyone is coping as well as can be. I haven't been posting much due to the RA which seems to have spread to fingers. One minute my hands were perfect the next day all was not good, how quick the RA spread or perhaps it’s the biologic? Who knows. Told the only way to fix is exercise! Easier said than done. As said, I need to be my own Dr and put on my persistent hat!

Stay well, gentle hugs, Hessie 🤗

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Hessie5
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7 Replies
BUDGIEBURDEKIN profile image
BUDGIEBURDEKIN

Congratulations Hess, I hope all goes really well for you. Xx

Hi hessie, sooooo pleased for ya! I’ve had RA for 21yrs and never had an MRI scan, it seems we all have to fight for what we want ( as if we didn’t have enough to battle with) stay well and listen to your body! only you know how you feel, the Rhumatology specialist don’t always get it right! I know through experience!!! 🤗💐

Mmrr profile image
Mmrr

There seems to be post code and rheumatologist lottery going on. I've never had any problems getting MRIs. It is so unfair on people.

Great news you are getting one now.

Stormpetrel profile image
Stormpetrel

Dear Hessie5

So good to read your post. Well done for standing up for Yourself, such apathy towards chronic disease in the medical profession. Really hope it all works out and you get the best possible treatment

BoneyC profile image
BoneyC

Hope the MRI gets you what you want. Unfortunately, my top foot surgeon refused to give me an ankle replacement last year because in his opinion I'm too young (54) and they only last 10 years, so potentially I might need 2 revisions. This was despite him agreeing I have extensive joint destruction.

wishbone profile image
wishbone

A shame Hessie that you had to fight for an MRI scan, but well done and hope you get some relief soon.

Gnarli profile image
Gnarli

Wahay! I'm thrilled for you and hope it gives you what you need. I look forward to hearing all about it

J

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