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Grateful but frustrated
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
I have ITP. In March my cbc was 1000 and the doctors were as frustrated as I was. The count would go up substantially after a platelet transfusion and by the next day it would plummet. On Jan 30th 17 I was told they couldn't help me and I was going to die. I was in the hospital almost 64 days.We'll
Betty1950
in
ITP Support Association
7 years ago
Anyone have MDS too?
Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effect of MDS is chrinically extremely low platelets. My dad was diagnosed with MDS (mild) with 3.5% blasts in his bone marrow biopsy. His platelets are 10 now and we will be doing Nplate next, if needed. But that's for ITP and
Has anyone else been diagnosed with MDS? (Myelodysplastic Syndrome) A side effect of MDS is chrinically extremely low platelets. My dad was diagnosed with MDS (mild) with 3.5% blasts in his bone marrow biopsy. His platelets are 10 now and we will be doing Nplate next, if needed. But that's for ITP and
HappyHopeful
in
ITP Support Association
7 years ago
Tingling
Has anyone experienced of tingling-pins and needles,while on a course of Nplate.
Has anyone experienced of tingling-pins and needles,while on a course of Nplate.
garyphillz184
in
ITP Support Association
7 years ago
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Romiplostin Nplate
Had my first Nplate injection today.Has anyone had this treatment,and is it successful .
Had my first Nplate injection today.Has anyone had this treatment,and is it successful .
Benboy10
in
ITP Support Association
8 years ago
Answer
No Georgia. I didn't have preeclampsia! Was a normal pregnancy and an absolute normal labor. During my pregnancy my platelets were 250K. After two weeks after delivery the bruises appeared from nowhere. I was founded with 5K platelets. Nothing worked only Nplate. You're right, Nplate is given in "mcg
No Georgia. I didn't have preeclampsia! Was a normal pregnancy and an absolute normal labor. During my pregnancy my platelets were 250K. After two weeks after delivery the bruises appeared from nowhere. I was founded with 5K platelets. Nothing worked only Nplate. You're right, Nplate is given in "mcg
Deniss
in
ITP Support Association
8 years ago
Tpo receptor agonists
I was on steroids for 5 months and now been taking mycophenolate for 4 months with no results I'm just about to start injections of Nplate, has anyone had experiences of this drug?
I was on steroids for 5 months and now been taking mycophenolate for 4 months with no results I'm just about to start injections of Nplate, has anyone had experiences of this drug?
Lou1967
in
ITP Support Association
8 years ago
Sudden ITP
Hello All, I was diagnosed with acute ITP in October . I was in alot of pain with my joints , but I was told it was from the bruising and weakness of the state I was in. When zI was first admitted to the hospital my platlet count was 2000. I was immediately bloodtyped and given platelets to bring
Hello All, I was diagnosed with acute ITP in October . I was in alot of pain with my joints , but I was told it was from the bruising and weakness of the state I was in. When zI was first admitted to the hospital my platlet count was 2000. I was immediately bloodtyped and given platelets to bring
Deborah5167
in
ITP Support Association
8 years ago
No symptoms! frustrating!!
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Ironspur14
in
ITP Support Association
8 years ago
Just found this site and have already read so many posts that give me hope :)
Hi my name is Rickey and am 34 and i have itp, was diagnosed a little over a year ago, my levels have varied dramatically lowest being 12. They have tried the prednizone, which worked for a week then stopped, the Nplate shot, which didnt work and lastly the promacta which i have had some success with
Hi my name is Rickey and am 34 and i have itp, was diagnosed a little over a year ago, my levels have varied dramatically lowest being 12. They have tried the prednizone, which worked for a week then stopped, the Nplate shot, which didnt work and lastly the promacta which i have had some success with
Rfisher3013
in
ITP Support Association
8 years ago
Diet and excercise
Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by time they checked!), I responded ok ish to steroids and after 9 months was discharged. By July 13 is was back, with a count of 27, (not as bad as some I know!),
Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by time they checked!), I responded ok ish to steroids and after 9 months was discharged. By July 13 is was back, with a count of 27, (not as bad as some I know!),
Ironspur14
in
ITP Support Association
8 years ago
Platelet Count
Friday, August 26th my count was 29. I didn't receive my Nplate shot for two weeks which caused my count to drop significantly.
Friday, August 26th my count was 29. I didn't receive my Nplate shot for two weeks which caused my count to drop significantly.
ITP_September_2014
in
ITP Support Association
8 years ago
Nplate
Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate shot in two weeks. I'm starting to feel sluggish, developing Petechia spots, bruising and nose bleeds. My Dr and I are discussing making an appointment for a spleen scan at St. Barts in London. September will be my 2 year
Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate shot in two weeks. I'm starting to feel sluggish, developing Petechia spots, bruising and nose bleeds. My Dr and I are discussing making an appointment for a spleen scan at St. Barts in London. September will be my 2 year
ITP_September_2014
in
ITP Support Association
8 years ago
ITP – Need more options
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count
ITP_September_2014
in
ITP Support Association
8 years ago
HARRISON@ITP
I was treated for ITP 3 yrs. ago when I came down with sepses; platelets dropped to 2K and I was admitted to hospital for approx. one week; thereafter I thought all was okay even though I was sluggish; achy in the joints; mostly in the knees in the heat; swelling of fingers and stiffness with aches in
I was treated for ITP 3 yrs. ago when I came down with sepses; platelets dropped to 2K and I was admitted to hospital for approx. one week; thereafter I thought all was okay even though I was sluggish; achy in the joints; mostly in the knees in the heat; swelling of fingers and stiffness with aches in
tip-3
in
ITP Support Association
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
9 years ago
Fostamatinib Trials
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have now been referred to Oxford and they are trialing a new drug called Fostamatinib - I had never heard of this but they would like me to start trialing
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have now been referred to Oxford and they are trialing a new drug called Fostamatinib - I had never heard of this but they would like me to start trialing
Sachmo16
in
ITP Support Association
9 years ago
Is Nplate a recommended treatment
Hello, I was diagnosed as having ITP 5 years ago and seem to have had the same treatment given to me as to all other posters. Starting with prednisolone then azathioprine, rituximab and IVIG. Platelet count has gone up and down over these years ranging from about 15 to 30, only going above this after
Hello, I was diagnosed as having ITP 5 years ago and seem to have had the same treatment given to me as to all other posters. Starting with prednisolone then azathioprine, rituximab and IVIG. Platelet count has gone up and down over these years ranging from about 15 to 30, only going above this after
Hidden
in
ITP Support Association
10 years ago
How safe is nplate?
andrea_48
in
ITP Support Association
10 years ago
Doctor wants to take the spleen out if my counts gets to 120,000 I've been on nplate for 3months and my count hasn't been higher than 39
Has taking the spleen out helped anyone. I've had itp since August 2013.
Has taking the spleen out helped anyone. I've had itp since August 2013.
cjoh
in
ITP Support Association
10 years ago
ITP with low red counts.
I have seen many posts mentioning fatigue and exhaustion, which I have. I am curious if many of you with ITP also have low red counts. I know your red will drop with ITP when bleeding and extreme bruising. My platelets are at 9k, red is at 2.3, hematocrit at 26% but I don't have too much bruising or
I have seen many posts mentioning fatigue and exhaustion, which I have. I am curious if many of you with ITP also have low red counts. I know your red will drop with ITP when bleeding and extreme bruising. My platelets are at 9k, red is at 2.3, hematocrit at 26% but I don't have too much bruising or
Pilily
in
ITP Support Association
10 years ago
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